3 month check up moved forward + pain and concern

13 years 6 months ago #33820 by mmc
Martin,

What country are you in? What protocol do they follow?

It very well could be a UTI but your uro should have tested you for it and seen something in the urine sample. Then you need to take the antibiotics.

Recurrent UTIs should be evaluated though and with T1 a reTURBT is highly recommended in other countries so it might be a good idea to try to find a way to get another done just to be safe. Bladder cancer is often understaged.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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13 years 6 months ago #33818 by martin
Thanks. I did not have a TURBT as in my country this is not the protocol. Yes, he sent the urine to culture again this time. My fear is that some tumor was left that causes this symptoms. I am thinking of getting a second opinion.

T1G2
TUR 05/10/2010

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13 years 6 months ago - 13 years 6 months ago #33791 by mmc
Martin,

You should certainly talk to your urologist about your concern.

Bladder cancer can have similar symptoms to a UTI and be intermittent. So, it could have been what you thought were UTIs were really symptoms being caused by the bladder cancer tumor.

Just because there was no bacteria 6 weeks ago, doesn't mean there isn't bacteria now. Did your uro do a urine culture? Just because you have symptoms of UTI, it still doesn't necessarily mean you have a UTI.

When was your TURBT? Did you have a follow up TURBT yet or is it scheduled? Any diagnosis of T1 should have a follow-up TURBT around 6 weeks after the first TURBT.

Untreated UTIs can be dangerous. The infection can move to the kidneys and beyond and then they are much harder to treat. The point being that you should consult your urologist whenever you think you have a UTI and he/she can explain the importance of treatment and the potential dangers of not treating them.

If they did not do a culture, then it may or may not be a UTI. It could be another symptom from the bladder cancer so it is certainly not something to be ignored. You should certainly see your urologist and get a culture if you haven't already.

I know I had cases prior to being diagnosed with bladder cancer that I thought I had a UTI and went to urgent care and was put on antibiotics but they came back a couple of days later and said there was no infection. That went on for a year and half or so until I finally went to a urologist as was diagnosed with bladder cancer.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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13 years 6 months ago - 13 years 6 months ago #33790 by martin
Hi,

I was diagnosed with BC in May 2010 (unfortunately worse type - T1G2) and I have similar symptoms, only adding that I also have pyuria and my pee is darker than usual. My first cysto checkup was this Tuesday and also was negative. Uro says he hardly sees the incision from TUR.

My Uro says that this is a simple UTI but 6 weeks ago they did not find any bacteria in the pee. Also, before the TUR UTI-s cleared up for me without taking antibiotics in a matter of days and did not last this long.

Has anybody had similar experiences?

T1G2
TUR 05/10/2010

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13 years 7 months ago #33632 by DougG
Glad to hear it! Enjoy your baby girl!!

Anita
Forum Moderator
Caregiver

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13 years 7 months ago #33608 by vgau
Always great to hear about someone having an all clear.

High fives and many wishes for fun times ahead.
Vi

Dx 10/5 Non Invasive Papillary

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