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Finally have appt for 2nd opinion

9 years 3 months ago #31694 by vgau
Talked to them yesterday and they will not do a cysto since it is a self pay. Makes me wonder what will be covered in the visit.
I faxed a request for an overnight of my slides and hope they get here in time.

I'm calling the insurance today to see if there is any university that is covered by my plan. Thinking I may need to do some major traveling.
Vi

Dx 10/5 Non Invasive Papillary

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9 years 3 months ago #31673 by vgau
I thought I was pretty organized because I do have a book with my discs of CT scans and the pathology report. I just had no idea about the slides and am learning more I probably need to make sure I get into my book.
I also have a data table where I have written all the dates with each doctor what was done and results for a quick look.

This is just another reason that I am thankful for everyone here and what I am learning to make me a more aware patient.

Thanks and keep the advice coming.
Vi

Dx 10/5 Non Invasive Papillary

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9 years 3 months ago #31672 by Rockyiss
Hi Viv When I went to john hopkins for a second op. I hand carried all my records , slides and ct scans. I have been to apps where it was all sent but got misplaced, and then there is not much they can do untill they find the stuff. I just find I have less stress when I can hand it to them.
Also I have my own copy of everthing, bloodwork ,cts, lab results you name it and I put it all in a notebook that goes with me to everyone of my husbands dr apps for his cancer that he had. It keeps my thoughts clear on what happened, when ,and there have been times the drs. did not have copies and I was able to give them mine to make copies for themselves. In fact I had a copy of my husbands ctscan before the drs and knew he had a tumor before they did.
Hope it all goes well for you. Rocky

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9 years 3 months ago #31668 by vgau
I don't have any type of slides. I only have a disc with the ct scan. I'll look on the pathology report to see who to call for slides. Thanks for that heads up.
Vi

Dx 10/5 Non Invasive Papillary

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9 years 3 months ago #31667 by mmc
Not sure. She'd probably look but it doesn't hurt to ask/request ahead of time.

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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9 years 3 months ago #31666 by Patricia
Vi..are there slides? Call pathology and ask for them to be packed up and ready for you to take with you. The pathology report is only as good as the pathologist and she will want to see those slides.
Pat

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