Cystocscopy time, again

13 years 11 months ago #31522 by sara.anne
Replied by sara.anne on topic Cystocscopy time, again
GOOD NEWS. I got up early and fought rush hour traffic and got to my appointment for the biopsy early. Got all prepped and numbed and he went in with the camera. Guess what? The "little red spot" had practically disappeared...healed. He decided NOT to do the biopsy....showed me all the interesting things he was looking at on the tv monitor. That is the good news. The OTHER news (I won't say good/bad) is that I start BCG again at 1/3 dose in three weeks.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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13 years 11 months ago #31448 by vgau
Replied by vgau on topic Cystocscopy time, again
Best of luck and I hope you hear good results. I know what you mean about the mind playing tricks on you.
You've had some good advice for me in the past and now need to give that right back to yourself. Tell that brain to get lost.

Wishing you good news,
Vi

Dx 10/5 Non Invasive Papillary

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13 years 11 months ago #31421 by cas1966
Replied by cas1966 on topic Cystocscopy time, again
hi,

thanks for posting to my message (my dad just had all clear check up at 2 1/2 years. my dad had a similiar situation at his one year check up. the doctor saw a "white fuzzy" thing that he thought "was trying to do something". anyhow, they did a biopsy that turned out negative. i think they just chalked it up to the bcg treatments. i can understand your worries and concern. i am a "what if" person, i know it is not good, i will think about everything that could go wrong. take care and please let me know how things are.

claudia

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13 years 11 months ago #31388 by Joey
Replied by Joey on topic Cystocscopy time, again
Sara, I am sure everything will be fine. My next appt got pushed back to 06/10 which if all clear I could go ever 6 months. If clear, the following week I too would pick up again the maintenance BCG #'s 13-15. Still at full strength.

Joey

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13 years 11 months ago #31385 by sara.anne
Replied by sara.anne on topic Cystocscopy time, again
Good luck, Ann! I have been on 1/3 dose BCG, down from 1/2.
And we will be at 1/3 the next round. My uro has left it up to me as to whether I continue. He has had some patients with really bad cystitis that lasts forever...mostly male (he says that guys' plumbing makes it harder on them, poor babies.) I have really mixed feelings. On one hand, I do dread it; basically I am "under the weather" in one way or another for a whole month. On the other hand, if I quit now and CIS came back I would always feel that it was my fault.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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13 years 11 months ago #31384 by pemquid
Replied by pemquid on topic Cystocscopy time, again
Sarah Anne--

Best of luck with the biopsy and results. Hhope all will be clear and you can proceed to the BCG.

As usual, you and I are more or less on the same schedule. I go for my 3-month cysto next week, then 2 weeks after that go in for my 6-month maintenance BCG sessions (3 weeks worth). I had a stronger than usual reaction last time I had the BCG which was months ago, with bad pain and spasms for about 3 days though no bleeding or other symptoms. My uro said I could stop treatments, but I said I'd like to try to continue on a reduced dose, so he's going to go down to 1/3 and we'll see how that goes.

Ann

Small TA Grade 1, May-06; recur (2 tiny), same, June-08; TURBTs both times. BCG begun July-08, dosage to 1/3rd May-10, completed treatment December-11. All clear since 2008.

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