So I am 4 weeks out. Had my follow-up visit with surgeon 2 days ago they took some scans of the bladder injecting contrast into the bladder and showed no leakage. I had all tubes and stents removed (Whew that was an uncomfortable experience) It seems the stents did not want to come along willingly with the foley. Once out I had had a few more minutes of pain and then none.
All the pathology came back negative, cancer was only present as CIS inside bladder wall and had NOT even made it to muscle. That puts me in the 95-98% survival area. I'll take that for sure it only confirms that I made the right decision for me.
As for the reflux! It's all gone now. I don't take anything for it or for indigestion. My apetite has been slowly returning. I really enjoyed turkey, gravy, mashed potatoes and some stuffing on Thanksgiving.
Right now my biggest issue is to try and get the feel for controlling my new bladder. Since it's only been 2 days that I have had a chance to actually use it the jury is still out on that.
One more thing, I seem to have some wild fluctuations in day to day energy levels. The other day I could hardly get up from the chair and felt sleepy all the time. Not sure if this is related to getting all the drugs out of the system, trauma, or just trying to eat enough to get some more energy. I'm sure this will improve over time.
Will keep you posted on progress.
Rudy