Not what I wanted to hear

14 years 7 months ago #27606 by Alan
Replied by Alan on topic Not what I wanted to hear
I love great news Sara Anne! Also to hear about what must be a really great doc!

Alan

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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14 years 7 months ago #27602 by Joey
Replied by Joey on topic Not what I wanted to hear
Excellent news. Glad to hear everything is a ok

Joey

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14 years 7 months ago #27601 by pemquid
Replied by pemquid on topic Not what I wanted to hear
Sara Anne--

Congratulations on the good news. You have every reason to be happy with your uro! Hope things will clear up so you can continue BCG treatment, hopefully with a reduced dose to avoid a repeat of the cystitis. As I recall, you and I are on close to the same BCG schedule, so I follow your posts closely. (My next check-up is in early October, followed several weeks later by 3 weeks maintenance BCG.)

Ann

Small TA Grade 1, May-06; recur (2 tiny), same, June-08; TURBTs both times. BCG begun July-08, dosage to 1/3rd May-10, completed treatment December-11. All clear since 2008.

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14 years 7 months ago #27597 by cljjlk
Replied by cljjlk on topic Not what I wanted to hear
Sara Anne

That is great news. I have to agree that you must have a special doctor to make calls on Sunday. As we all have experienced, the wait for the pathology is worse than the procedure itself. I am in the waiting mode myself. I will know the results of my TURBT on Wednesday. Hang in there with the continued BCG treatments.

Chuck :cheer:

dx - Aug 2005
Five reoccurences (last 12/09 Ta high grade)
BCG Started 10/09 (2 6wk treatment)
BCG Maintenance started 4/10

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14 years 7 months ago #27594 by Nix
Replied by Nix on topic Not what I wanted to hear
So happy everything came out so well - now I can un-cross my fingers:laugh:
I have had the problem of BCG Cystitis and effects for over three months:( It can take a long time to clear, mine is finally getting better and almost back to normal. I know everyone can get different levels of Cystitis, just make sure your bladder is ALL CLEAR before the next round.

Nix

Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07

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14 years 7 months ago #27592 by Flamenco.
Replied by Flamenco. on topic Not what I wanted to hear
Hi,
Am so pleased for you that the test results were ok! I can imagine how you felt after getting the call, and yes, full marks for your doc·s weekend call,
Diane

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