BCG\'s and how we react

Steve,

My uro had me on a different protocol as he believes in 6 instilllations, rest 6 weeks with a cysto then 6 more instillations and that is it with the ACS suggestion of checks every 3 months until 2 years, then 6 month etc. My response is only to let you know I passed small amounts of spotting blood twice (I think the 3rd and 10th) instillations. Somehwhat an expected side effect as long it isn't prolonged. The last 2 (11th and 12th) I couldn't hold the BCG an hour. Many URO's believe as little as 30 minuters is therapeutic and almsost all allow for smaller strength if you have worsening side effects. Also, they should do a urine sample before any instillation to rule out bleeding or infection, which also happened between my 7th and 8th-had to wait 1 week. I had mild spasm after every instillation and mild pain urinating for a day.

Message here is everyone is different and as many would say listen to your body and communicate with your URO.