Mitomycin Shortage

14 years 9 months ago #26165 by Cynthia
Replied by Cynthia on topic Mitomycin Shortage
I just found this posted on Dr. Lamms website.

askdrlamm.bcgoncology.com/2009/05/571/

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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14 years 9 months ago #26120 by Cynthia
Replied by Cynthia on topic Mitomycin Shortage
I was asked about this just the other day and did some research and this is what I found.

Mitomycin for injection is listed by the FDA as being a drug there is shortage of. I investigated and I believe the story to be that of the two manufactures’ of it one sold the manufacturing rights to an Indian company and that is causing the current situation.

www.fda.gov/Drugs/DrugSafety/DrugShortages/ucm050792.htm

I wrote Dr. Lamm one of our medical advisors and considered by many to be the father of BCG and this is what he generously shared. My question was did he have any suggestions for substitutes? Your Uro would need to contact him for specifics such as dwell times and dosage and I have included a link to his website.

www.bcgoncology.com/drlamm/

This was taken from an abstract for UroToday the presentation was given for the 09 AUA. Dr. O’Donnell did not mention exact amounts but I included his contact page. I am sure if a Urologist was to inquire he would share the specifics.

www.urotoday.com/37/browse_categories/bladder_cancer/aua_2009__a_review_of_aua_clinical_guidelines_on_the_management_of_
nonmuscle_invasive_bladder_cancer__session_highlights.html

www.uihealthcare.com/depts/med/urology/urologymds/odonnell.html

I hope this helps

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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14 years 9 months ago #26119 by Cynthia
Mitomycin Shortage was created by Cynthia
I received this from a new user and I am posting it for general information because this could be a problem for more than just her husband.

My husband was diagnosed with bladder cancer in January of 2008. Since that time he has undergone several surgeries and rounds of BCG treatments. He did not respond to these treatments. He was supposed to start a new chemo called Mitomycin. He has been told that this medicine is nationally out of stock. Does anyone know anything about this? Please advise back. Thanks

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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