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10% BCG Effective?

10 years 4 months ago #25858 by Joey
Nix I have had my 11 with the 12 tomorrow. I did have bleeding, urgnecy and frequency, chills, sweats,and mild fever for about 24 hours. I am still at 100%. So you have been getting BCG for 2 years every 3 months? I have read that a reduced percentage still is effective.

Joey

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10 years 4 months ago #25834 by sara.anne
When my uro and I discussed reducing the dose (which we did) he noted that there is no scientific basis for the dose we are given..."that is just the one they used in the initial studies." Guess we should just be lucky the one they picked works!! My last was at 50% and may go down further next time.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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10 years 4 months ago #25824 by Nix
I think Bladder Cancer is at the bottom of the list for funding:(

Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07

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10 years 4 months ago #25823 by mmc
I did the "Ask Dr. Lamm" on his website a while back asking about effectiveness of the lower doses because I had seen a statement to the effect of "lower stregth doses do not show reduced efficacy" or something along that line.

My question to him was "Why don't the protocols get changed to the lower strength doses since it would reduce the drop out rate due to side effects".

His response was basically funding. What they have now works so there isn't research money to do studies on lower dose protocols to try find the optimal strength.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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10 years 4 months ago #25808 by alsimons
Thanks Jack

I just had my 2nd BCG and was wondering why I was only getting 33%.

Al

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10 years 4 months ago #25807 by Moonerj
Hi Nix

According to Dr. Lamm it is still effective at 10%.

http://www.bcgoncology.com/treatment/bcg.html

All the best,
Jack

TA Grade 1
3 Turbts
30 BCG Treatments
Cancer Free since Nov 2007

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