Nix I have had my 11 with the 12 tomorrow. I did have bleeding, urgnecy and frequency, chills, sweats,and mild fever for about 24 hours. I am still at 100%. So you have been getting BCG for 2 years every 3 months? I have read that a reduced percentage still is effective.
When my uro and I discussed reducing the dose (which we did) he noted that there is no scientific basis for the dose we are given..."that is just the one they used in the initial studies." Guess we should just be lucky the one they picked works!! My last was at 50% and may go down further next time.
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
I did the "Ask Dr. Lamm" on his website a while back asking about effectiveness of the lower doses because I had seen a statement to the effect of "lower stregth doses do not show reduced efficacy" or something along that line.
My question to him was "Why don't the protocols get changed to the lower strength doses since it would reduce the drop out rate due to side effects".
His response was basically funding. What they have now works so there isn't research money to do studies on lower dose protocols to try find the optimal strength.