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blood and/or clots.

10 years 7 months ago #25369 by sara.anne
I am one of those who NEVER had any blood. Even after diagnosis. There are so many variables, as Warren said.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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10 years 7 months ago #25364 by Alan
Hey Warren,

Thanks for the insights. I now know a little more about our "subject".

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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10 years 7 months ago #25361 by wsilberstein
The mystery of medicine for patients and doctors (I'm a pediatrician as well as a BLC survivior) is the myriad of ways a disease can present. No two patients have exactly the same symptoms. Yes bleeding occurs with bladder cancer, sometimes microscopic, and sometimes a clot which is what got the ball rolling on my further evaluation. But as I said, some of our fellow warriors had no bleeding at all. Nobody can tell you how much bleeding to expect because there is no rule, but once bleeding is deteected, it should trigger a diagnostic workup.

-Warren
TaG3 + CIS 12/2000. TURB + Mitomycin C (No BCG)
Urethral stricture, urethroplasty 10/2009
CIS 11/2010 treated with BCG. CIS 5/2012 treated with BCG/interferon
T1G3 1/2013. Radical Cystectomy 3/5/2013, No invasive cancer. CIS in right ureter.
Incontinent. AUS implant 2/2014. AUS explant...

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10 years 7 months ago #25359 by britt
My point is missed. Im happy that it wasnt a constant until the cancer was ddressed but wondering why it didnt happen more than 2X in the course of a year that I was "infected" with the cancer.

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10 years 7 months ago #25353 by wsilberstein
Cancers in the bladder and the intestines bleed. They are not normal tissue. They are growing rapidly and may have areas that outgrow their blood supply causing tissue breakdown. I don't know that I can explain adequately why they bleed, but fortunately the finding of blood in the stool or urine is at least a sign to check for cancer. There are a few members here who never had blood in their urine.
All I can say is that due to chronic cystitis I had microscopic blood and intermittent urnary symptoms for 8 years before the cancer. If I hadn't passed that clot, who knows how long my urologist would have waited to take another look inside - and that would no doubt have allowed it time to become invasive.

-Warren
TaG3 + CIS 12/2000. TURB + Mitomycin C (No BCG)
Urethral stricture, urethroplasty 10/2009
CIS 11/2010 treated with BCG. CIS 5/2012 treated with BCG/interferon
T1G3 1/2013. Radical Cystectomy 3/5/2013, No invasive cancer. CIS in right ureter.
Incontinent. AUS implant 2/2014. AUS explant...

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10 years 7 months ago #25352 by britt
What exactly does resection mean. Before my TURB was done it was ordered as a cystoscopy done under general with a resction and biopsy. They had never been "in" to take a look at that time due to blockage in the prostate area. All that was done was ultrasound. DId that turn up a tumor and they didnt mention it? my care was so shoddy in this intsance that Im really getting in over my hed worrying about things I probably shouldnt obscess with

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