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Cysto Update - Good news and some cautious news

11 years 2 months ago #22237 by Rosemary
Good luck, Joey. Please keep us posted as to how you are doing...


Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006

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11 years 2 months ago #22231 by Joey
Update as to treatment. Dr at Hopkins indicated that the displasia is not very meaningful. His recommendation is to let the bladder heal for three more months have a repeat cysto and then we can revisit BCG maintenance.

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11 years 3 months ago #21971 by Joey
Had my follow up cysto last week. Little history:
11/21/07 dx,Turbt 12/05/07, 4cm low grade TCC non invasive
opted for 6 weeks BCG, little side effects, stent for 2 weeks
04/25/08 cysto, cytology and Fish negative, 3 pathologist at lab showed displasia, another opinion showed focal CIS
05/05/08 Turbt to remove more of site,cytology negative, kidney wash negative, 2 patholist at hospital showed no sign of cancer, same second opinion patholigist as on 04/25/08 showed focal CIS. Stent placed in for 8 weeks
07/27/08- Cysto negative, cytology negative, Dr. suggested need to let bladder rest for 3 months before recommending treatment.
10/16/08- Cysto, two biopsies taken, one negative, one Displaysia, cytology atypical cells. Waiting to hear what treatment to start again. The three months the bladder has improved greatly from a standpoint of frequency etc. No longer get up at night and can go 4 hours without relieving.
The cautious news I guess is that the displaysia and atypical cells could be a warning of another cancer visit. Hopefully the recommendation will be the 3 week BCG maintenance that could clear this up.

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