Symptom of BCG's?

Okay guys, I don't want to beat a horse to death, but, I would like to just make a record here, in case someone else has to go through this, then I'm hoping that my record will help.

I had to get up in the dead of night last night to take pain meds for the terrible pain in my teeth and face.  This morning, on my way to work, the pain was edging up and I was worrying that I might have to make an appointment with the dentist to extract the tooth, get a root canal or at least beg for some antibiotics.

This is so unusual for me, and my supposition is so strong that this aggravation is BCG related, that I made a last ditch try, thinking that my body is full of inflammation, I took a Celebrex.  I took the Celebrex at 8:00 this morning and it is now 1:45, and I've needed to take nothing further than that little pill.  The pain is completely subsided.

I'm taking a wild guess that the inflammation in my body that has been a result of BCG treatments is causing this terrible face pain after my dental work.  At the very least, I believe that it is aggravating it out of all proportion.

I am so glad that the pain has subsided.  What an awful pain it is.

Your friend,
Rosemary

Hey Yo,

As always it's good to hear from you.  I'm glad your husband is getting a break and wish him the best at his poke and peek in June.  My doc said he wants to take a peek again in 6 weeks, so, if all is well, then I suppose I'm back on the every 6 months schedule.

Most interestingly, my arthritis has not worsened with these last treatments, but, I am still having trouble with my teeth.  The dentist prescribed a strange mouth rinse with Benadryl (?) and Nystatin and Hydrocort. He agreed that the BCG treatments might have aggravated the situation.  The mouthrinse helps, but, I still have to take Aleve or Tylenol.  The doc gave me Oxycoton  :-X which I was scared to take, but finally did, and 10 minutes later, was surprised to see a news report on every major TV network about how addictive Oxycoton is.... :o

Anyway, the pain drove me to try it again today, but honestly, the Tylenol seems to work better.  I'm hoping that you are right and that these miserable side effects will fade away in a couple of weeks time.  Painful teeth being one of them......

Give your hubby my best.

Thanks for your post,
Rosemary

Hi Rosemary,

I hope you are feeling lots better today but I know from my husband's treatments that it's about 2 weeks or so before you really start feeling a lot better. I think you and he were pretty much on the same schedule but I believe he's had 3 more treatments than you. I think he felt as crummy as you also, meaning lots of bleeding, frequent urination, bladder irritation and body aches. He's getting back to normal now with the last treatment on 4/27. So, this is it for you? His next scope is in June and BCG won't start again until October. Best of luck to you and everyone on this board going through this.

Happy Mother's Day!

Yosemite

Wendy,

You are just the best!!! Thanks.

Before I sign off from this thread I would like to give this one last bit of advice of what helped to get me through these last 3 miserable, gunky feeling BCG treatments.

1.  Get past the bad part

2.  Get a good shower.

3.  Get in your car and go get a cold mocha frappucino made with yogurt.

4.  Get back to normal. (At least as close to normal as possible) :

What a relief it is to get a good, clean shower. Once you get to that point, then you seem to know that the worst of the pain and bleeding and spasms are past. Then, of course, after drinking lots of good clean filtered water to flush yourself out, that cold frappucino feels mighty good going down!!

Always,

/me

Just remember that you may already have got the full benefit, you did not have CIS (the biggest risk for progression), you could be cured at this point and never have a recurrrence.

If you ever-god forbid!-had a recur, it would be wise to see what kind of tumor and treat accordingly, and there are treatments enough these days. I would be extremely shocked if anything bad happened to you, plus you have karmic credit with the universe!

Relax and get better.
Wendy

Thank you, Sandra.

Your friend,
Rosemary