Back on the Merry-Go-Round

16 years 1 month ago #14143 by ddoyle
Replied by ddoyle on topic Back on the Merry-Go-Round
Ouuuuch!!! What a nightmare :-X You are a very brave person to have undergo this type of torture. It's never a good sign when the doc performing the procedure breaks out in sweat. Hope you don't have an emergency. Good luck on the surgical procedure. So sorry you had to go through this.

David

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16 years 1 month ago #14142 by wsilberstein
Replied by wsilberstein on topic Back on the Merry-Go-Round
Well, Folks! Here's the story. On Wednesday they canceled my appointment because my urologist was ill. They rescheduled me for this afternoon. Things did not go well. At first he thought the stricture would be easy to deal with, but I could see he was starting to break a sweat (not an encouraging thing to see) and things were not progressing. So he had to take out the filiform and take another look with the scope. It turns out that what he thought would be easy was just a membrane and there was a heavier stricture behind it. So he reintroduced the filiform and tried again. After a few more tries with the smallest follower he advised that we couldn't proceed. So, I have all the discomfort of a procedure and none of the benefit, and have to schedule an operative procedure on the stricture followed by a cystoscopy at that time. And heaven help me if i can't pee any time before then, because a catheter can't be inserted through my tight stricture.

-Warren
TaG3 + CIS 12/2000. TURB + Mitomycin C (No BCG)
Urethral stricture, urethroplasty 10/2009
CIS 11/2010 treated with BCG. CIS 5/2012 treated with BCG/interferon
T1G3 1/2013. Radical Cystectomy 3/5/2013, No invasive cancer. CIS in right ureter.
Incontinent. AUS implant 2/2014. AUS explant 5/2014
Pediatrician

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16 years 1 month ago #14014 by ddoyle
Replied by ddoyle on topic Back on the Merry-Go-Round
Warren,
Here's hoping you can keep your 8 year streak of being cancer free going. Sorry you have to endure the discomfort of dilation and cysto --- and of course the anxiety of having to wait. We are pulling for you.
David

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16 years 1 month ago #13844 by Potter
Replied by Potter on topic Back on the Merry-Go-Round
Hi Warren,
just dropped in to the webcafe after a period of abstinence! Sorry to hear of your situation. I must say your 8 year run of good luck has been a source of hope to others and I am rooting for you big time! Hers's hoping its not a return of BC.

best wishes, Potter ;)

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16 years 2 months ago #13800 by Gracie
Replied by Gracie on topic Back on the Merry-Go-Round
Hi Warren,

Just went for my cysto. So encouraged with the last couple where they (and the FISH) came back negative. Bladder looks good except for this little smooth bump! No idea what it is. Damn here goes the worry again! Waiting for the tests to come back now.

I am commiserating with you and know that I feel like ripping someone's head off a few days before the cysto. (makes for a nasty HR person which is what my profession is!).

My husband is so sweet and caring and this time said - maybe you should just get it out instead of going through this each time! Not sure when one gives in. Just feel so guilty putting him through all of this.

Warren, I have read your posts. They have been a source of encouragement and information. One step at a time. As hard as this journey is - we have to remember that. Keep us posted.

Best,
Gracie

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16 years 2 months ago #13781 by Landon
Replied by Landon on topic Back on the Merry-Go-Round
Warren,

Sorry to hear about your situation. I am sure that you are well taken care of, and I hope that everything comes back ok. If I had to choose between the dilation and cancer, I would more than likely go with the dilation! Keep us posted, and we will keep you in our thoughts!

Landon

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