Hey Mike
Since the above Ive decided to go down your route and have RC with neobladder and (I hope) nerve sparing.
Im looking at recurrent CIS in spite of I think (!) 5 cycles of BCG. Ive had BC for 14 years - always superficial but with a grade 3 tumour a year and a half ago with CIS.My logic is that, statistically, the Cystectomy has a better cure rate the earlier I do it. Its been a horrible decision but i really genuinely feel more relaxed now its made! I still have moments of doubt but this isn't a small thing. I know its not going to be easy but I have met with cystectomy patients under my own surgeon and they live very full and happy lives. Plus the last person I met looked incredibly healthy! As I said above.
Its always great to hear from people like yourself who have gone down that road and feel positive about their decision. I can't say its not scary but now im just keen to move forward. I would add that I lost my father to BC 4 years ago so I know what it can do.
To answer your question; my cystectomy is elective. the hosital would continue with the BCG for a bit longer as my disease is still superficial they think, however, that cystectomy is my best option. i don't want to lose the survival advantage of removing it early in the disease process. Plus Ive fought this off and on for 14 years, I'm a bit weary and it seems like it will move me into another more proactive direction. And I trust my surgeon to do a decent job.
mostly I want to believe its a kind of re-birth for me. its only now im realising the toll on my pyche the last 14 years has been!
Onwards and upwards. My best wishes to you my friend. I, and many others here, know how bloody hard it is to be in your situation and have to make these horrible choices. I'll keep you posted and let me know how you get on