Diagnosis of  Metastatic Bladder Cancer

17 years 6 days ago #4870 by Renee
I can sympathize, it is very hard to be in this emotional turmoil. And it is difficult to remain optimistic. But the disease is one, granted a big one, but your relationship and life with your Dad is another. We sometimes get so caught up with the disease that we forget to share memories, stories, watch a movie, listen to music and just enjoy each others company. Maybe you are lucky, and you will be able to share many more years together, but maybe you are not, in that case you like to live en enjoy every moment by focussing on live instead of cancer.
Wishing you strength,
Renee

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17 years 1 week ago #4867 by bethmckee
Replied by bethmckee on topic Diagnosis of  Metastatic Bladder Cancer
Having such a rough day today. Dad sounds good he had a blood transfusion today to help get his numbers back up. I just can't beat the sinking feeling I'm having. I have been so optimistic most of the time but lately I just can't get there. The emotional rollercoaster of it all is really taking its toll right now.
I'm sure you all can relate to that feeling. One minute up the next minute down. What are some things you all do to make yourselves feel better?

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17 years 1 week ago #4854 by wendy
Hi Beth,

Sorry to meet you under these circumstances, but I'm glad that you're here. It's very tough, to be in the position you're in, and my heart goes out to your father. Hope is good, there is definitely reason to hope.

Please keep us posted.
Wendy

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17 years 1 week ago #4845 by bethmckee
Replied by bethmckee on topic Diagnosis of  Metastatic Bladder Cancer
My Dad has BC metastisized to lymph nodes. He is almost done with carboplat. and Gemzar tX.
He's struggled but he's hanging in there. He is now in "clinical remission" I am so scared to believe it. I am happy for him but waiting for the other "shoe to drop off" all the time. I lost my 35 year old sis in law to cervical just last year so I guess you can say I am spooked anyway. This is Dad's 3rd time with bladder cancer. He was diagnosed in 2004 and had bladder removed. He lives with a neobladder.Almost made it to his 2nd year cancer free when we found it had spread to just behind his naval and then found it had spread to his lymph nodes in 3 places. We know the stats and are hoping for the best. He has a great outlook but is also realistic. This is my first time posting and Im happy to have a place to vent.

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17 years 1 week ago #4840 by Zachary
Replied by Zachary on topic Diagnosis of  Metastatic Bladder Cancer
I was thinking about Kim today, and about those who prey upon desperation.

Parasites like this and scammers like this are only too happy to sell us fake cures and miracle beans. I find these two particularly loathsome.

In our quest for a cure, let's not let our loved ones become victims as well.

"Standing on my Head"---my chemo journal
T3a Grade 4 N+M0
RC at USC/Norris June 23, 2006 by Dr. John Stein

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17 years 2 weeks ago #4657 by Renee
Hello Kim,
I read your e-mail and I read the replies. It is hard to give advice without knowing a bit more about the bladder cancer. Indeed as Wendy said you could get a second opinion. I also think the reply of Zachary was valid. My husband had bladder cancer that had metastasized to the lymphnodes and lungs. There is an alternative treatment but without knowing more it is hard to say if it might be helpful. My husband tried it for a month, but the cancer had spread so we stopped the treatments. When the cancer is really aggressive there is sometimes not much what we can do. This is hard to understand and accept. If you like you can give me some more information and I may be able to give some advice or at least give some support.
Regards,
Renee

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