Pembrolizumab (Keytruda) treatment for Urothelial Carcinoma

5 years 9 months ago #55446 by Jack R
Jatony,

Unfortunately, I do not know any doctors in your area. My suggestion of Moffitt is based on their NCI Cancer Center designation. They treat a full range of cancers, including both bladder and kidney.

Call them, ask the questions that matter most to you. If far away, ask if you can have a telephone consultation with a doctor dealing with your condition.

Keep asking questions. They will have a number of top doctors on staff, to whom tough questions can be directed. You could also ask about Mayo, if that is closer. Make the most use of your local resources as you determine who you want to see or be treated. The telephone can help speed up the process.

From the Website:

Moffitt Cancer Hospital Contact Us
Every team member at Moffitt Cancer Center is dedicated to providing the best service and highest standard of care. We look forward to speaking with you.

To schedule an appointment
1-888-663-3488
Request an appointment online

Patient Appointment Center Hours: 7 a.m. to 7 p.m. Monday - Friday; 8 a.m. to noon Saturday

Contact Us
Every team member at Moffitt Cancer Center is dedicated to providing the best service and highest standard of care. We look forward to speaking with you.

To schedule an appointment
1-888-663-3488
Request an appointment online

Patient Appointment Center Hours: 7 a.m. to 7 p.m. Monday - Friday; 8 a.m. to noon Saturday

Patients, family and caregivers
Cancer Answers®

Our team is here to help you with your questions. Call 1-888-663-3488 or use the online form.

Best,
Jack

6/2015 HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one & only kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo# 3
Begin year 4 with cis
2/19 Chemo #4
9/19 NED again :)
1/2020 CIS is back
Tried Keytruda, stopped by side effects
Workin on a new plan for 2021

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5 years 9 months ago #55444 by jatonyctofla
Mr. Jack, thank you.

Do you know of a very experienced Medical Oncologist at Moffitt Cancer Center or the Mayo Clinic in Jacksonville, Florida.

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5 years 9 months ago #55443 by Jack R
Jatony,

The only NCI designated Comprehensive Cancer Center in Florida is the Moffitt Cancer Center at the University of South Florida in Tampa.

New patient & Physician referral 1-888-960-2778
Website www.moffitt.org

Please see my reply to your query from two days ago. You are facing tough choices, and you need a highly experienced care team. NCI designated centers can offer that level of care. MSK is also such a center; having an additional opinions can be useful

Below is a link to the NCI center finder.
I hope you find the help and care you seek.

Best,
Jack

Why Choose a NCI designated Cancer Center ??
Find an NCI-Designated Cancer Center
NCI-Designated Cancer Centers deliver cutting-edge cancer treatments to patients in communities across the United States. Find a center near you and learn about its patient services and research capabilities.

www.cancer.gov/research/nci-role/cancer-centers/find

6/2015 HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one & only kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo# 3
Begin year 4 with cis
2/19 Chemo #4
9/19 NED again :)
1/2020 CIS is back
Tried Keytruda, stopped by side effects
Workin on a new plan for 2021

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5 years 9 months ago #55439 by jatonyctofla
Memorial Sloan Kettering Cancer Center recently diagnosed me with Urothelial Carcinoma,

Right kidney lower pole - detached fragments of high grade urothelial carcinoma and hyalinized stroma.

Right kidney mid pole biopsy Invasive urothelial carcinoma, NOS

Local invasion Lamina propria

Medical Oncologist at MSK recommending:

removed my only kidney and be on dialysis.

Pembrolizumab (Keytruda) immune therapy

As anyone familiar with Pembrolizumab immune therapy and it success.

Also, I need to find a good Medical Oncologist in either Central Florida area or within the State of Florida to administrate the drug and follow me.

Thanks you for your support.

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