need help with urostomy bag

Rocksteady,

My doctor also told me that the nephrostomy was needed to place the stent. There is apparently no way to find the ureter by going in through the conduit outlet. Best of luck.

Joe

Joe, Thank you so much for your reply. That sounds like what I have been reading. My doc said they do the nephrostomy tube as a means of getting the stent in but it doesn't always hit the proper spot. They could send me home with a bag and try again about a week or 2 later after the swelling goes down. That sounds like the rotten part. I think I'll get a 2nd opinion, maybe do nothing for a while.
Thanks again, you have been very helpful
Rocksteady

Rocksteady,

Yes, having this IC does get simpler with time!

My nephrectomy (removal of left kidney) was required because that is where my cancer began. They thought originally it was renal cell carcinoma and so they left the ureter in place. That is why the ureter was removed in a separate procedure once it was known to be transitional cell carcinoma and it had spread to the ureter and bladder. That is different than the antegrade ureteral stent and nephrostomy. I had both after surgery.

During surgery there was a stent placed from the ureter through the conduit that quickly dislodged within a day of surgery. 2-3 days later the swelling of the connection between the conduit and ureter made it such that urine was not flowing. I had a nephrostomy tube placed directly through my right flank into the kidney and it drained into a separate collection bag for about a week. That was very uncomfortable and made it difficult to move and sleep. Keep in mind this was right after surgery too.

Then they removed the nephrostomy and placed an anterior ureteral stent from the kidney through the ureter and into the conduit. That stent was painless. That stayed in place for six weeks until I had one heck of a sneezing fit and it dislodged from the conduit into the pouch. Saved me a trip to the doctors to have it removed!

Hope this information is helpful and best of luck to you. Let me know if I can answer any more questions.

Joe

J, Thanks for your reply. I have figured out a few accommodations for this thing. It's funny how things get simpler over time.
I would like to hear about your nephrectomy. They want to do a nephrostomy tube on me and an antegrade urethral stent. My doc said stent and I thought oh, like my cardiac stents but I guess not.
He hasn't explained anything so I don't know how long the tube and/ or stent will stay in. Is it painful afterward? Do you have to wear another bag?
Thanks for anything you might care to share.
Rocksteady

Rocksteady,

Just cruising through posts and I came across yours. I know it's late and you've probably figured out the answers to the questions, but I'll offer my opinion to you.

I live in NJ and travel for work to both warm and cold climates I have found no problems with sticking the pouch into my jeans and tucking in a shirt over the top. I wear jeans and cargo type pants that seem to be a bit more roomy in the front for when the pouch fills up.

I use the Stoma Guard device as a protector at work but when I'm at home, I don't usually wear it. It's pricey, but I work in an industrial environment so I was concerned about puncturing it if I walked into anything sharp. I'm considering trying the waist band by Ostomy Secrets which has a pouch for added support.

I'm not familiar with a leg pouch. Can you offer more detail?

Folding the pouch isn't an option as the pouch needs to fill up or urine will back up.

Hope you found a solution that works for you.

Hi all, I had my RC 8.1.16 w/ ileal conduit. I'd say I've been very lucky w/ my stoma and pouches so far after reading other posts, as far as healing and leaking. I'm wearing a 2 pc Hollister. Just had stents removed 9.7.16 and have developed an infection either uti or kidney. Very painful left side and lower back.
My problem is what to do this winter...Shorts and t-shirt are easy when dealing with emptying pouch, changing etc. I need advice on what you can and can't do as far as tucking bag into pants, etc. My stoma is about even w/ my navel so the pouch and drain could be tucked in if that doesn't compromise the bag filling properly. Could I just fold the bottom of the bag up so I can tuck in my shirt? It gets cold here. I am trialing my leg pouch now, could I fold bag and adapter up and just tuck tube into pants?
Any advice would be greatly appreciated, it seems like a cold way to go w/out being able to tuck at least a t-shirt in.
Thanks, rocksteady