Gotta\' Go...again.

Mark,

I only get that sensation when I first go to bed. After that, I am out like a light. Never had such great sleep in 10 years as I had prostate issues that used to cause me to be up every hour to hour and half to urinate.

I guess if you get that sensation, it's a good thing for acheiving night time continence. However, if you wake up when it happens, that's fine. If you don't at least you aren't wet when you do wake up. If you do wake up in the night, you can always unplug the bag and just go the toilet with the condom catheter on. Then just hook the hose up again when you get back in bed.

Also, I used to hate using those under-sheet pads because they trap the heat and I'd get all sweaty and uncomfortable from that as well. Needed them though because even with the pads and depends it would often leak out.

My nightly output can range from next to nothing up to 1000ml with an average of around 600ml.

Mike

Thanks to all for their version of this "O so much fun condition." Seriously, it is good to hear that I am still about normal though. Mike, the condom catheter sounds good but doesn't the "flow" sensation in the middle of the night give you a panic, or is it just something to get used too?

Mark M.

Mark,

My neobladder surgery was early October last year. Like you, I got impatient. I have been day time continent for months now and I don't even worry about night time.

I stopped using the pads and diaper things because I just did not like it at all.

I switched to condom catheters. They have non-latex styles that have an adhesive in them that hook up to a catheter bag. I get the extra 18" of hose extension to add to the bag. That way you can just leave the bag on the floor next to the bed and there is room to roll around at night without a problem with hoses. I use it every night and I sleep ALL NIGHT, every night and don't get any wetness whatsoever.

The downside is that I am so happy with it that I'm not concerned about trying to set alarms and acheive continence at night. For me, that's something I can live with. I do fall asleep on planes and have not had a problem but I sometimes where a pad if it's a very long flight just in case being asleep leads to some leakage.

The day time should get better very soon for you. If not, follow up with your uro to see if there is a problem preventing you from acheiving daytime continence.

Mike

I just had to jump in on this thread and offer what I could. I am now 1 full year out of neo surgery and I am ok all day. But I still have leakage at night. I was having real trouble with this as I was soooo embarrassed about it. It took my wife to settle this down and make me stop fretting the noght wets.

Some nights are fine, maybe for two weeks, and some are not. I have done keegles and even set the alarm. Still I have wet nights at irregular intervals. I am pushing through because my wife has assured me that this is a small price to pay. I guess with that line of thinking, I am ok.

With that line of thinking, you will be OK too. If incontinence is the only price to pay for being here, its a deal. I should know a deal, I'm a car dealer.


Good luck, keep positive and work on it.

Mark,

I couldn't put it any better than Irishguy. Its a slow process. At 4 months I was still sleeping on a recliner lined with absorbant pads, but it did get better, although it is a very slow process. You'll find that daytime continence comes first and it is another journey to get through the night. I am at a stage at night where the great majority of nights, I will get up to go twice a night and the pads I am wearing stay dry. But just often enough to keep me off balance I'll have a bad night and some really wet pads.

I am at the 16 month mark now from my neo. And while daytime is pretty flawless with me able to go 4-5 hours between bathroom trips it seems like I am at the longer end of the scale at night.

As long is it keeps getting better, all I can do is bear with it.

Leeh

I am so sorry for the difficulties you are having and will pray for you, as the Lord brings you to mind.

Reading these posts of incontinence is scary for me right now! Have had my 1st TURB, 1st six BCGs and am awaiting my 1st post-op Cysto.

All of my pre-surgery symptoms returned 3-weeks ago & remain, with the exception of “visible” blood. Was supposed to have my Cysto on the 11th, but its been re-scheduled to the 24th. You folks know BC is like a weed, it wants to keep coming back. I tried to get another Dr in the same office to do my Cysto earlier than the 24th , but no luck so far.

The saga continues