9 days and counting, ?? from my wife

16 years 5 months ago #10152 by momof4
Replied by momof4 on topic 9 days and counting, ?? from my wife
Peggy,

Would this not be a choice for you?

Hospital: www.azcc.arizona.edu/


Dr.: www.azcc.arizona.edu/fap/results.asp

This Dr. might not be the guy, but I bet he can refer you to someone who is....


My husband is seeking treatment at a Comprehensive Cancer Center, we are pleased with the attention he gets, and that there is a protocol that is followed, but they also are willing to modify certain things to suit the patient. We are not a number at Wake Forest, they know us by name and greet us whenever we arrive. I cannot say whether the link I sent you would have similar protocal, but is is worth a phone call to see what they say about Marcus.

Karen

Caregiver for my Wonderful Husband Angelo, who has Metastatic Bladder Cancer.

Life isn't about how to survive the storm, but how to dance in the rain.

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16 years 5 months ago #10150 by Marcus
Replied by Marcus on topic 9 days and counting, ?? from my wife
Hi Momof4 - I forgot to tell you Marcus was at Tucson Medical Center (TMC). We will be sending all his information to the University of Iowa (Dr. Williams) for a second opinion. Marcus trusts him which is most important...I do too. We're up having coffee with our friends. EDAG and OPT. Every Day is A Gift and Only Positive Thoughts - words to live by today.
Peggy

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16 years 5 months ago #10084 by Patricia
Replied by Patricia on topic 9 days and counting, ?? from my wife
the only NCI center in Arizona www.azcc.arizona.edu/ has but one physician in the field and his primary interest is prostate cancer..Dr. Frederick Ahmann..
The NCCN has noone in Arizona. I would not chase down anymore physicians in Tucson...I would head to a MAJOR Cancer facility that deals with BLADDER cancer..i think MD Anderson is the closest but maybe not...i mention USC/Norris and Dr. Stein because he does about 90 of these a year and is a leading researcher and a specialist in the field. www.usc.edu/schools/medicine/departments/urology/index.html...


Here is MD Andersons personnel www.mdanderson.org/departments/bladderspore/dIndex.cfm?pn=CB17D2D1-8B38-11D5-813100508B603A14
Pat

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16 years 5 months ago #10082 by momof4
Replied by momof4 on topic 9 days and counting, ?? from my wife
Peggy, were you at the Comprehensive Cancer Center in Tucson?

Caregiver for my Wonderful Husband Angelo, who has Metastatic Bladder Cancer.

Life isn't about how to survive the storm, but how to dance in the rain.

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16 years 5 months ago #10080 by momof4
Replied by momof4 on topic 9 days and counting, ?? from my wife
This disease is bad enough on its own without the incompetence that is in the medical field.

Get him somewhere good and get him there fast. There are even pilots who will fly cancer patients and spouses for free. Don't wait another day. Get his records and go. Don't even wait for an appointment. If he just had surgery, he can be re-admitted to any hospital anywhere....Find the Dr. you want and go to that hospital, get admitted, and work out the rest there...

Caregiver for my Wonderful Husband Angelo, who has Metastatic Bladder Cancer.

Life isn't about how to survive the storm, but how to dance in the rain.

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16 years 5 months ago #10077 by Patricia
Replied by Patricia on topic 9 days and counting, ?? from my wife
I don't know Peggy...personally i'd get on the first plane to MD Anderson with all your records...and all those records are yours...request the discharge summary from the hospital and all the pathology reports...they're yours...they're on the computer.See if they can get you in asap. Maybe they can rectify this. If MD Anderson won't get you in..call John Stein at USC/Norris......call somebody who is competent. This just should not have happened.. i'm so so sorry........Pat

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