Iliostomy Care

Hi, I have the same kind of bag. Just had my surgery in March so I am just walking for now to build up my strength. I had a very bad infection a few weeks after my surgery. I was told to change bag twice a week, the overnight bag twice a month, which gets vinager and water in it for an hour 3 times a week. I was told to always carry a complete change of the bag with me when I go out. I can't for the life of me see myself changing this bag if I were to have an accident in a strange bathroom....was wondering if anybody has been out and had any accidents?

I have the same diversion as you and have had it for 11 years.

I change all things every day, the stomaplate, the bag, and even the nightbag.

It feels better that way, and the risk of it smelling is lesser.

I wish you luck with your bags, and eventually you will get used to it.

It sure changed my life.

Sincerely,
Knut

KR4U,

How long ago did you have the procedure? Have you looked into accessories for use with activities?

Try www.edgepark.com/ostomy_supplies

or

www.ostomysuppliesinfo.com

I felt the need to answer you on your first post.
But I do not have the same diversion as you have. I had a bag for a while after surgery and I "feel your pain" (Sorry for that, but)

But this cancer thing has one recurring theme......... incontinence and what the hell do you do with it!!!!
I have a neo bladder and at first glance it seems perfect, but we neo's have our own issues and I can sympathize with you.
But if incontinence and hardware(your issue) are the only hardships of being cancer free..... I guess we'll take it. But we ARE allowed to Bitch about it

I do hope someone here, with the same diversion will chime in and help you. And I hope they have a solid solution for you. But until then.... Welcome! And I hope you continue to be active and this is your ONLY problem.

George

I recently had bladder cancer and ended up with an Iliostomy to care for. They say the bag needs to be changed every 3 to 4 days. I have been changing the bag every day. I find that the more active I am the more often it has to be changed. What do I do to keep the bag on longer than 1 day? I use the two Iliostomy pouch. The one is a ring that is adhesive which goes over the stoma and the other is the pouch itself that has a plastic ring on it and it snaps onto the adhesive piece. I don't know what I am doing wrong to make me have to change it so often. When I am sitting around I don't have the problem. I'm not the type person to just sit around and let the world go by. I need some guidance!!!!