Expectations after radical cystectomy & neobladder

Glad he's doing better!
You might want to let him know about this site. He may have questions over time and there are a bunch of us here who have gone through what he has (in terms of surgery).

Mike

Another update:
My worries about my father's kidneys were unfounded. Apparently, a stent had been put in his kidney during the surgery. That has now been removed.

He is doing much better now. He is catheter-free, walking and doing his Kegals.

Thank you so much for this forum. I was really very out of my league here and your advice has meant so much to me.

Carol

What do you mean the results of the ultra sound are not back? I could look at them right now and tell if there was anything going on. Heck..call the hospital and ask for the results and go sign for them
And another thing don't get too rattled over e coli showing up ..it shows up about 67% of the time with neo bladders and usually we are asymptomatic. I have a heck of a time with ER's everytime i have to go in and give a urine sample!!
The lower urinary tract of patients with ileal or colonic neobladders is heavily colonized with potentially uropathogenic and anaerobic bacteria......so whatever is affecting your dad may or may not be whats in the bladder..its what maybe got cross contaminated to his blood stream. That happened to my husband after a kidney stone and a very traumatic cath...he shook so hard i thought we were having an earthquake. It was sepsis and he was in the hospital for 10 days. Hopefull the antibiotic they're using is taking care of it...but i'm not so sure they've actually got it diagnosed.
Its your right to ask for an infectious disease doc.
pat

Another update:
They have still not received the results of the ultrasound of the kidney.

They have been told that they have determined the type of infection and it is e coli.

My mother waited until mid-afternoon and called the urologist's office. They called her back and said that the surgeon is coming by to see them after clinic hours.

I've done just enough research online to scare myself. It appears that e coli can occur after an intestinal surgery and that e coli can cause renal failure.

Sure sounds like sepsis to me. Can you call in an infectious disease specialist to confirm what this bug is and why it is hanging around. As for the flushing are you using new catheters each time or washing them out.....try not to reuse until this seige is over. Do you have the correct sterile irrigation fluid? Read the side of the bottle. My pharmacist actually mistakenly gave me some once which said on the side."not for irrigation". It also has a very short shelf life.
If this happens again ..honestly if Vanderbilt isn't too far away thats where i would take him. They have the stoma nurses there and top bladder cancer specialists.
pat