Mike,
That's right.....a neurologist is for nerves....duh! LOL
I really don't think it is nerves either but you just can't be 100% sure of anything. I read up on Interstitional Cystitis and although this is primarily for women.....men have been known to have this too. Some of those symptoms are exactly the same as my dad's (go figure). I read that a chiropractor or PT actually re-aligned the spine and took pressure off some nerves that were pressing in the wrong places for relief. Some women got immediate relief from the IC symptoms. I guess it is worth a try, right?
Whem he was in the hospital this last go around...the infectious doctors were running all types of tests....no fungal, no blood count issues, nothing except the e-coli found in the neobladder...and that took about 5 days to culture.
Yes, I believe he is more than just bummed out at this point....he talks about ending his life, not worth continuing, can't go on like this, this is no life, there is no hope for me, etc. His primary has already prescribed some low dose meds for this but he REFUSES to take them because he says he doesn't want to be a zombie. When he is feeling well...he is fine, happy, outgoing, etc....but lately that is just a few days out of the month which is what has him so down.
It is not easy dealing with a very stubborn, set in his ways male (yep...my dad), that has never had to deal with any medical issues other than this BC and does not tolerate pain.
He does get the B12 shots from his primary...that was very low. I do have a medical summary for him but I guess I need to update it now and include the tests run at the hospital these last 3 times.
By the way.....he has been on Cipro for the past 7 days now and the burning is not going away. They gave him the Cipro for this last strain of bacteria found.....something called Serratia??? not sure but in the family of e-coli. Doc said the lab recommended Cipro but it must not be working at all because the burning is still there....unless it is not caused by any bacteria/infection. This is the biggest mystery!!
Thanks again for all your help Mike. ANYTHING you think of....please write to me!!
Jackie