Anyone hear from Intransition?

14 years 5 months ago #27887 by mmc
Replied by mmc on topic Anyone hear from Intransition?
Great news! A little better everyday as you recover but it sure is good to know that lymph nodes are clear!

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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14 years 5 months ago #27881 by Webs
Replied by Webs on topic Anyone hear from Intransition?
Great news Intransition. Love that you have gotten back to getting out and about.

Webs

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14 years 5 months ago #27879 by inTransition
Replied by inTransition on topic Anyone hear from Intransition?
Hi everyone.

Wanted to share my good news.

I am 7 weeks post surgery and have been home 5 weeks. I just had my postsurgical follow up appointment and found out the pathology results: no cancer detected in any organ or the 47 lymph nodes they removed during surgery. This is especially good news as early CT scans noted abnormal-looking lymph nodes near my bladder (noting that it needed to be confirmed by pathology, of course).

My recovery was initially pretty slow as it took me a while to get back to eating a variety of foods, but I have been doing very well the last 2 or 3 weeks. Have gone out to a restaurant, to the movies, back to church, etc. I am on my way!

Thanks for your support!

Diagnosed Stage 3 March 09.
RC August 09 at MD Anderson, TX
Ileal Conduit (Bag Lady)
Age 52

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14 years 6 months ago #27596 by GKLINE
Replied by GKLINE on topic Anyone hear from Intransition?
I remember being home and not feeling like eating a thing. I started out on orange juice and soup broth. I think I was eating tiny meals about 10 times a day. I still remember my first solid meal... a tuna sandwich! it seemed like heaven at the time.

I also remember the first rejected meal.... a perfect filet, medium, cooked to perfection.......REEEEEJECTED!

So, for about a month we RCers found out about what works and what doesn't. It surely is a matter of finding what works for you. Good luck, and find the new style of comfort food.

George

Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
=
New Man! [/size]

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14 years 6 months ago #27583 by mmc
Replied by mmc on topic Anyone hear from Intransition?
I had nasty ileus so that was my issue and I wound up in the hospital for 12 days. When I could eat, I ate small but didn't really have a problem with anything I did eat.

Don't remember what I had but I don't recall not being able to have anything in particular or anything in particular causing a problem (until 4 months later when I ate two big navel oranges and wound up with a blockage the intestinal resection site).

I remember my first thing to eat (not counting two days of jello) was mac and cheese in the hospital and then some salad. Then I had an omelette for breakfast and they let me go home.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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14 years 6 months ago #27582 by reseda1420
Replied by reseda1420 on topic Anyone hear from Intransition?
Did anyone NOT have a problem with eating? The first time they pulled my tubes after my gut got going I threw up some medication and water. Tubes went back in for a couple of days until the gut was really going good. From that point, I was on a full diet 24 hours after pulled my tubes the second time and started on a liquid diet. By the following night I was having the broiled salmon. Yes, the taste was a little off, but it sure was good. I ended up being in 3 extra days because of that.

I will say I did stay away from the BBQ ribs and pizza for a couple of weeks when I go home.

I am wondering what percentage of folks had some initial issues and what percentage didn't.

LeeH

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