Kidney Not Producing Urine

15 years 10 months ago #17694 by harleygirl
Replied by harleygirl on topic Kidney Not Producing Urine
Sorry for the delay in responding and thanks to Patricia and Dr. Silberstein for the replies.

On Friday Dad was still not producing urine from his left kidney and we called the doctor's office again. I also sent another (and stronger!)email to the doctor, and no sooner did I send it that he called me on the phone. Evidently, he had been giving a lecture in Chicago and had not received any messages from anyone.

He told me to get Dad to the ER for a CT scan to determine what was going on with the left kidney. While at the ER, the doctor's P.A. came to see Dad and ordered blood work. Dad's hemoglobin was at 8.0 and his sodium was critically low, as well. They found that the left stent had slipped slightly and they sent him back to the interventional radiologist to replace it. The P.A. also said that Dad needed to be admitted to the hospital (the one we had just left the day before!) to get his hemoglobin and sodium regulated.

A different interventional radiologist repositioned the left stent than the one who had put in the right stent and he told us the left stent had slipped and was blocked (we're not sure with what). This was the same stent that a different radiologist had told us was fine the day before. When this second radiologist found out that we were from a different city, he decided to save us a trip back to the hospital and remove the nephrostomy tube right then. That turned out to be a HUGE mistake. As he tried to remove the tube, evidently it was on or near an artery and Dad started spurting blood! They had a difficult time stopping the bleeding, but finally got it under control. He was admitted to the hospital and later that evening, Dad's hemoglobin had dropped to 6.3. He received two units of blood and they had him on a sodium drip.

His fluids were also restricted to 500cc per 24 hour period. It appears he was drinking so much water to flush his kidneys for the nephrostomy tube, he flushed all the good stuff out, too. It was a pretty scary situation.

It happened that Dad's urologist was on call over the weekend, so he came to see Dad in person at the hospital on Saturday. He said Dad was going to be fine and that his hemoglobin level will continue to increase. I'm not sure I believe that, but I have to trust that he knows what he's talking about. He let Dad go home after only one night in the hospital with hemo at 8+ and sodium at 128 (still lower than normal.)

Dad is monitoring his input and output now and not drinking so excessively as he was before. He is also drinking Gatorade and cranberry juice and not just water. He tires easily but does look better than before the trip to the ER and has been eating a tiny bit better. He has an appointment to see the doc on Tuesday and he plans to tell him that the stents that were put in are way too short. Guess he'll have to go back and have that adjusted. If it's not one thing, it's ten!

Interestingly enough, when the urologist came to see Dad on Saturday, he told me to not send him emails about emergency situations. I asked him what the heck I was supposed to do and he said call the Resident on call. Did that and also called his office several times. Nobody has ever called us back! When the doc called me on Friday, he said he had been on an airplane and had not received my emails until he got back to Dallas. That's when he picked up the phone to call me and tell me to get Dad to the ER. So, instead of a local ER, we drove to Dallas to go to the ER where Dad's doctor could direct the treatment. However, we didn't see him until the next day, but he did send his Physician Assistants to manage things at the hospital and a Resident to check on Dad Friday night. Such is life at a teaching hospital.

So, that's our latest saga. Thanks to those who replied with helpful suggestions.

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15 years 10 months ago #17619 by wsilberstein
Replied by wsilberstein on topic Kidney Not Producing Urine
Hi All,
Pat sent me a PM asking for my comments. Glad she did. My life is hectic, but good, and I always have time for you folks so please feel free to contact me if you think I can help.
Anyway, my first comment is more of a question. What really was going on with your father's right kidney? Nephrosis has so many possible meanings all I really know is that there was something wrong with his kidney. In kids, nephrosis generally refers to the results of inflammation of the kidney, and neither nephrostomies nor stents get involved with the treatment. Perhaps a clearer understanding of what's going on with your father's right kidney might lead to an explanation about the bigger picture and help to understand what's happening to his left kidney.
Second, is the left kidney obstructed, or not producing urine? That's a crucial question, and not one that has weeks to figure out. There are nuclear scans, ultrasounds, and CT scans which should clarify that answer. If the kidney has somehow become obstructed due to what they've done, they need to fix that ASAP. If the left kidney isn't producing urine they need to know if the blood supply to his kidney was affected or if the kidney is failing.
Maybe it's something as simple as the right kidney, once opened up, has not recovered enough to concentrate the urine properly and is overproducing urine so that the left kidney is doing what a well behaving kidney should do and compensating by producing less. But it's still important to know that the left is functioning and not miss an opporunity to fix something that can't wait.
I can't promise to monitor this thread, so please PM me if I should follow this discussion further.

-Warren
TaG3 + CIS 12/2000. TURB + Mitomycin C (No BCG)
Urethral stricture, urethroplasty 10/2009
CIS 11/2010 treated with BCG. CIS 5/2012 treated with BCG/interferon
T1G3 1/2013. Radical Cystectomy 3/5/2013, No invasive cancer. CIS in right ureter.
Incontinent. AUS implant 2/2014. AUS explant 5/2014
Pediatrician

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15 years 10 months ago #17617 by Patricia
Replied by Patricia on topic Kidney Not Producing Urine
I'd go to the ER that Dr. Raj frequents and tell them he's your doctor...they would have to call him. I can't believe he doesn't have an emergency number? Its Friday...try to get him today........Pat

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15 years 10 months ago #17609 by momof4
Replied by momof4 on topic Kidney Not Producing Urine
Harleygirl,

You may want to try his office as soon as it opens and DEMAND a call back....Also the nurses station should be able to page him once he is back in the hospital. Don't wait for them be pro active...I am sorry that your Dad is having problems...

Praying for you,
Karen

Caregiver for my Wonderful Husband Angelo, who has Metastatic Bladder Cancer.

Life isn't about how to survive the storm, but how to dance in the rain.

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15 years 10 months ago #17607 by harleygirl
Replied by harleygirl on topic Kidney Not Producing Urine
Not sure how to call the doctor. I know how to call his office and leave a message. I don't know how to make anyone return a call or do what they've promised to do. The doctor has not answered my email yet. I called and spoke to the "doctor" on call. He "promised" to contact Dad's doctor. Did he? Who knows.

I realize that Dad is not the doctor's only patient. But, he might be the only patient whose kidney is apparently not working! You would think a situation like that would at least warrant a call from the doctor.

Does anyone here know how to get a doctor to call you back? Dad is already trying to decide which ER he will go to if his situation is not addressed. Not having a local doctor might, in retrospect, be a mistake, although when he had a local doctor, he never called back either!

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15 years 10 months ago #17604 by Patricia
Replied by Patricia on topic Kidney Not Producing Urine
Harley...is Dr. Raj in the know about all this? I'm puzzled. Are they sure they got the right kidney? Maybe the stent slipped on the left kidney? Something sure doesn't sound right does it? Call the main man and tell him whats going on.......geeez......Pat

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