Treatment begins at last .......................

16 years 1 month ago #14013 by fearandfight
Replied by fearandfight on topic Treatment begins at last .......................
Wtg Maria and I wish you the best and getting the chemo now b4 the RC in your situation is the best thing you could be doing. I had the high intesity MVAC chemo and and on my third day of my chemo week I got a shot of neulasta to keep the WBC up

I'm sure you have these links but I'll leave them anyways

www.drugs.com/neulasta.html

www.chemocare.com/bio/list_by_acronym.asp?acronym=MVAC

Sounds like you're ready to go a good team and all that is great I wish you the best of luck Maria and you will do just fine. Cheers, Joe ;)

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16 years 1 month ago #13948 by Stephany
What a great idea! I'm going to suggest it to him. I just got my sewing machine fixed (after 20 years of not sewing at all), and he can make one for himself.

Stephany in Iowa

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16 years 1 month ago #13774 by Maria
Hi Stephany, I had the nephrostomy 2 weeks ago, I wear a velcro waist band which is very comfortable, if I drop it to my hips I can get away with wearing jeans ok.
I could not wear leg bands, they are too uncomfortable and it feels the bag is about to drop.
I made a denim shoulder bag to cover the urine drainage bag, it looks great and I feel very confident wearing it outside. In fact I just clip my cell phone on the front and my lippy inside!
The biggest problem I find is the tubes, you have to be so careful that you don't catch them on anything, it hurts when pulled; I really miss not being able to sleep on my side!

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16 years 1 month ago #13757 by Stephany
Hey, Maria...good to hear from you, and good to hear that you have your feet planted firmly on the road. Keep us updated. I have been offline lately, trying to catch up with the paperwork involved in the insurance filings.

I am interested in hearing if you have found a good way to support/wear your nephrostomy bag.....are you wearing leg bands, or something else? My husband has one tube/bag combo, and has made himself a denim bag that he wears under his pants, with a belt around his waist. That way, he doesn't lose so many leg bands. How long have you had the tubes?

Stephany in Iowa

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16 years 1 month ago #13743 by Leigh
Hello Maria,

Wishing you all the very best with your chemo this week...

Keep us updated on your progress!!

Kind Regards
Leigh

Leigh, 39
Dx July 2007
TURBT July 2007
RC/Neobladder ,Studer Pouch, September 2007
Erasmus Centrum Rotterdam
TNM Classification: pT4 N2 Mo
4 cycles aduvant chemo Gemzar & Cisplatinum

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16 years 1 month ago #13677 by Melodie
Maria,

Yes, we are all different...but you are younger than I am, and I just have a feeling that since you are doing MVAC, as I did, that you are going to come through this chemo just fine. Expect that you may feel sick, tired, lose your appitite, will likely lose your hair, may have some numbness and tingling in feet or hands, and you will be "sick and tired of being sick and tired". But you will make it.
That is what counts. You accept what you must so that those nasty cancer cells can get wiped out. There will be other positives that result but those are not quite so visible...you will see. Keep a strong attitude and stay in touch. Hugs, Melodie

Melodie, Indy Pouch, U.W.Medical Center, Seattle, Dr. Paul H. Lange & Jonathan L. Wright

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