Percutaneous Nephrostomy

Maria - We've been reading your posts and just want to wish you well through the chemo and RC. Harry had his surgery first and then started chemo. I don't really understand the difference for chemo before or after RC, but know there must be one! Chemo is no walk in the park... Harry will begin his final round next week and is truly looking forward to being done with it! He's had his ups and downs but we take it a day at a time and think of the end results and our blessings through this journey. I have had you in my prayers and will continue to do so. Margot and Harry

Thanks for your replies. I slept all day yesterday, must have been the pain meds and my new night life, so to speak!
Had fun and games with the drainage bag and tubes................its like bringing home a new baby!!! I have been up past 2 nights every few hours checking the tubes haven't twisted and emptying the bag, it was easier last night and I am sure it will get easier in time.

I can relate to all comments regarding the bag and problems it brings, I have had so many 'near misses' catching the tubes, it just sends you into panic mode and then you realize you are ok.......... got to keep that sense of humor.
I have a velcro strap around my hips with the bag attached, that's ok for around the house. Tomorrow I am going out for a short time, I have baggy pants I can disguise the bag until I make the covers.

Duane, I did have the amnesia / pain relief for the procedure, no idea about the creatin, just knew the blockage needed dealt with urgently.
I am due to start chemo for 2 months and RC after.

Go for the glitz,, sequins, rhinestones etc. My husband decorates his bag, its a big smile face this week, sometimes he smiles more depending on how much is in the bag...decorate the bag Maria, buy some material and make covers, great idea. I was thinking of opening my own business, designing bags for ileaut conduit people. As far as clothes go I am sure you can get creative there as well,,take care, prayers for you, Ginger

The reason you can't remember is , they probably gave you VERSAID--(spelling)--that has the effect of amneisia plus pain relief. You never said what your CREATAN--(sp) level is ,mine went from 6.2 down to 1.4 after my RC, the tumor covered the opening to my left kidney. I can't rember what diversion you chose, I chose the outside bag and now the little slosh from the bag is just replaceing the urge to pee that I use to have.----OH by the way Bag covers

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Just google bag covers --they have lacey ones for women and Camo for men some are hand made , might help you with your design. Duane

Hi Marie
Glad the procedure wasnt as bad as you feared.Lets hope your disguises work do you have a date yet for your RC.Sometimes you just think what else can they throw at me.
Take care and good health
Lisa x

Hello Maria,

I am so glad you have found a great medical center and team for your chemo and RC...

After my RC I was sent home for a week with a catheter and bag but was given velcro straps for my thigh. The straps had two small buttons on them which clipped onto the bag. The bag is then hidden under any garment. I also relate to the sloushing of the urine that Melodie mentioned and constantly checking to see that the valve was closed.

Making little pouches for your bag in various colours is also a fabulous idea which will indeed keep you busy and take your mind off things a little...

You have a great positive attitude Maria and I know this will see you through this journey.

Kind Regards
Leigh