Don't Understand

16 years 5 months ago #10102 by Rosie
Replied by Rosie on topic Don't Understand
Jenz and all, the labs are no longer stating grades on their pathology report. It now only states the type like Papillary or TIS, etc. low grade or high grade. No where near as detailed as the pathology reports were a few years ago. I am one who has dealt with papillary superficial non-invasive transitional cell carcinoma for 7 years and plouged through all the warnings, cautions and over treatments that were not necessary with my particular spectrum and type of bladder cancer. Whenever you receive advice or recommendations from anyone on this forum it would be wise to consider at what end of the spectrum that person is themselves. Rosie

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16 years 5 months ago #10094 by wendy
Replied by wendy on topic Don't Understand
Hi Pat and Jenz,

pat....don't jump to conclusions. The path report could not come back within 2 days anyway right?, Jenz will speak about it next week with the doctor.... Jenz, might be that the tumor was so obviously a low grade papillary that they didn't grade it.

That is what happened to my sister when she went to Sloane, the doctor said her tumor was "too low to grade", and said it's a Ta, non aggressive tumor. He did not say polyp, as they are actually quite rare, but many times doctors do use this term (instead of the WHO term "papillary of low malignant potential PLMP). TaG1 papillary tumors are the most common tumors in bladder cancer-land and are often described as mushrooms, so I'm pretty confident that Jenz' path will be friendly (all things being relative in cancer land!).

My sister did not get a second opinion...she's 8-9 yrs down the road and cancer free. But Sloane was her second opinion and where she went for the TUR after her dx.

If there is any doubt, sometimes the next best step is a second opinion on the pathology rather than necessarily getting a second doctor involved. Just my opinion, though.

Best to all,
Wendy

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16 years 5 months ago #10086 by Patricia
Replied by Patricia on topic Don't Understand
Jennifer...honestly i don't want to rain on your parade.....but did he even send anything to pathology? If you had this done in the hospital just call the medical imaging dept and ask for a copy of it..give them the date it was done..and they have to give it to you. Something doesn't sound quite right here. I sure hope i'm wrong.
Let us know. I'm always one for second opinions.
Pat

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16 years 5 months ago #10085 by jenz
Replied by jenz on topic Don't Understand
I did and did not, the doctors assistant called and told me everything was clear. I will go see the doctor next Thursday for another peek and get a copy of the pathology report and he will go over everything and explain what I will need to do in the furture. I did ask if it had been graded and he said no, kinda made me feel like, he thought I stupid for asking, instead of being pleased that he had just told me everything was clear.

Forgive me for not getting back to you sooner. I have been in the bed with a very bad bladder infection. Wouldn't you know during recovery, I would get an infection. I got some new meds and I'm starting to feel better. The infection was making me have spasms one right after another. Boy, thats painful.

Jennifer

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16 years 5 months ago #10005 by Patricia
Replied by Patricia on topic Don't Understand
Jennifer...did you get a pathology report back yet? Pat

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16 years 5 months ago #10003 by Maria
Replied by Maria on topic Don't Understand
Hello Jenz, its fantastic news to hear that your surgery went well and that you are are ok. Good luck and take care of yourself. Maria x

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