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Sarcomatoid T2 Just diagonised, The PET scan shows no spread.

2 months 3 days ago #57578 by sara.anne
Your kidney problem is another very good reason why you should be treated at a place that deals with complicated situations. One good thing is that experts like a challenge such as you :)

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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2 months 3 days ago #57577 by JerrBrann
Thank You Sara, I will reach out. Another challange I have is stage 4 chronic kidney disease. I am not on Dialysis.

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2 months 3 days ago #57576 by sara.anne
Sarcomatoid is a rare form of bladder cancer, as you know. My advice would be to go ASAP to a place that sees and treats a wide variety of bladder cancer and has expertise in unusual situations. Examples of such places would include MD Anderson, Sloan-Kettering, Johns-Hopkins, USC, Stanford, and the National Cancer Institute. While radical cystectomy might be the start of treatment, there are new and exciting immunotherapy drugs in research which might be useful in your case. They would only be available in research institutions.

You might wish to contact Dr. Argawal at the National Cancer Institute for advice:
Piyush K. Agarwal, M.D.
Center for Cancer Research
National Cancer Institute
Building 10 - Hatfield CRC, Room 2-5952
Bethesda, MD 20892-1210
Ph: 240-858-3700
This email address is being protected from spambots. You need JavaScript enabled to view it.

Please let us know what happens


Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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2 months 3 days ago #57575 by JerrBrann
Do I have an option other than Bladder Removal?

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