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Restaging

4 months 2 weeks ago - 4 months 2 weeks ago #57509 by Alan
BCG is very effective. Response studies range at about an average of 75%+. From what I have read you are in good hands. Treatable and beatable!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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4 months 2 weeks ago #57508 by Neelloo2626
Thank you Sara Anne.

And we did get a response from the Dr. He indicated that restaging is typical 4 to 6 weeks out- he would inject Mitomycin in the OR after the secord TURB and then follow course of treatment with BCG but will consult with Stanford oncologist to determine whether BCG would be effective given my dad's medical history.

For the general population- how effective is BCG?

Thank you so much!

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4 months 2 weeks ago #57495 by sara.anne
I understand that you are very concerned but it is very unlikely that bladder cancer could spread that quickly. It has probably been developing for a long period of time. Your father has time to seek a place such as Stanford that sees a lot of bladder cancer and knows how to treat it.

The pathologist probably didn’t see anything that indicated to him that the tumor had spread even without muscle being present, but a second TURB is most often done in such cases as you are aware. No one can predict with any certainty what a second TURB will show but it is a good idea to get that second opinion.

Your father is fortunate to have you by his side.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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The following user(s) said Thank You: Neelloo2626

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4 months 2 weeks ago #57494 by Neelloo2626
So my father was diagnosed with urothelial papillary cancer high grade. Pathologist indicated noninvasive in the path report.

Spoke with the oncologist today and she said that if there is no muscle in the tissue sample it needs to be restaged and the path report should have been inconclusive but she will check with the pathologist on how that determination was made.

The issue is my father’s urologist didn’t make an initial recommendation for restaging- it was only when I brought it up that he suggested it!!!! Now I am terrified his high grade tumor has spread and the dr did not remove all the tumor!

My dad has to wait two weeks to get an apt at Stanford but now I am terrified that this was not properly staged and cancer has now spread.

Why would the pathologist indicate noninvasive if no sample of the muscle tissue was present? That makes no sense to me!

What are the statistics of a botched TURBT and then restaging pta to stage 1?

I don’t want to loose my dad- he’s the most important person to me

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