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University of Rochester medical Center

5 months 3 weeks ago #57212 by Jack R
Jjbrown

Explore the website for Roswell Park for a display of the breadth of services offered.

A follow up call to the information line (or email) allows the opportunity to explore your specific concerns.

Determining WHERE to obtain your care, in a manner acceptable to YOU, is a task only you can research. It can be a daunting chore.

Best
Jack

What's with this Bleeding ? 6/2015
DX: HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one (only) kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo , round 3
Begin year 4 with cis
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5 months 3 weeks ago - 5 months 3 weeks ago #57211 by Alan
Here is a start on hospitals. Within these you will have to research the best bladder ones: https://www.cancer.gov/research/nci-role/cancer-centers/find

I know the Cleveland Clinic, Sloan Kettering, MD Anderson etc are excellent!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
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5 months 3 weeks ago #57210 by Jjbrown
Jack
Thank you for the links. I feel blessed that I am not too far from some great cancer centers, but it is hard to find ( online) which ones deal with alot of bladder cancer. I have learned from this forum how important it is to have a surgeon that deals with bladder cancer often, as opposed to prostate issues. I have my homework cut out for me I guess!
Do you know if there is a site that lists how much a certain cancer center deals with bladder cancer?
Thank you!

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5 months 3 weeks ago #57201 by Jack R
Jjbrown

I note your search for a recognized leader in cancer care AND your mention of Roswell Park being "in your back yard".

The National Cancer Institute (NCI) lists about 70 of the nation's cancer centers as the backbone of cancer research and in controlling cancer. Roswell Park is one of those centers. Learn more about NCI Cancer Centers at:

https://www.cancer.gov/research/nci-role/cancer-centers

And learn more about Roswell Park at:

https://www.cancer.gov/research/nci-role/cancer-centers/find/roswellpark

Best,
Jack

What's with this Bleeding ? 6/2015
DX: HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one (only) kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo , round 3
Begin year 4 with cis

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5 months 3 weeks ago #57196 by Jjbrown
Ange
Cleveland Clinic is one of my choices. I heard they are top notch. I am waiting on my 3 month cystoscopy results to make a decision. That is in May. Hopefully no recurrance but if so, I will have to make a choice then as to what to do. I am about 3 hours away. I also have Roswell Park in my back yard so to speak so that is also an option. I heard tney are great there also. Thanks for your input.
Good Luck!
Also, I didn't urinate completely comfortably for 3 1/2 weeks after my TURBT. We all heal differently but a call to your doctor wouldn't hurt.

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5 months 3 weeks ago #57187 by Ange
Cleveland clinic you may want to look into. My doctors credentials are excellent as is his experience

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