Questions after TURBT.

Thank you Jacko. My Urologist is the best in my state, but doesn’t understand that I want to know everything that is or could be the cause of my symptoms. Trust me is never good enough for me.
I have 2 fairly young children who are old enough to know that cancer isn’t something you want. Right now I am lying to them every day until I know what is going on. Lying to my children isn’t something I aspire to do. I just want some answers!

Sirael2003

I had my first TURB 18 June 2018 after one heavy episode of bleeding with follow up urine samples showing cancer. It was a shock to hear that I had one Carcinoma Insitu tumour. The Uro also took biopsies from all around my bladder and reported that there were cancer cells everywhere.....but only one tumour which he dealt with. So its appears to be not unusual to go looking for other signs of cancer by taking biopsies from other areas of the bladder. His actual words were 'I have never seen a bladder like yours before' relating to the multiple positive biopsies for cancer he found during the first TURB. As it was a high grade cancer he followed up with a second TURB six weeks after the first, as is normal practice, so as to check on any regrowth/rate of regrowth etc. I was a line ball case of BCG or bladder removal. The consensus was give BCG a go and so we did. After 6 sessions a further inspection revealed no malignant cells. I am now onto 3 maintenance sessions.

Uros can be somewhat perfunctory in their dealings with us which leads to some angst. We persisted in asking questions and he got the fact that he needed to go further than just 'trust me'. That was a turning point and since then and by filling in the ever decreasing blanks with forums like this I feel I know where I'm going and to a certain extent, using the forum, who is going with me.

Keep your chin up.

Jacko

I haven’t gotten the news on the biopsies yet. The cytology was on my urine. I have my follow up next Monday.

I had my TURBT on Friday and feel like I’m in the dark. I’ve had visible Hematuria and cytology that was consistent with Urothelial Neoplasm. Doctor tells me upon waking that he pulled 2 tiny stones from my left kidney that I have known about for several years. I was told they weren’t going anywhere. He says he thinks they were causing the bleeding. How can tiny stones that aren’t moving cause heavy blood, and pain in the low abdomen and groin?

Doctor tells me he didn’t see any tumors and took biopsies. My question is if you don’t see anything how do you know what to biopsy?
The nurse called me today to check in on me. I asked her the same question. She said oh he probably did see something but it wasn’t suspicious looking! What in the world? I feel like I’m not being told the truth and would love some insight from you all. Thank you!