Hey everyone,
This is a continuation of my journey that begin on January 1, 2019. after three full days of laying around recovering, I went to work the day after my last post (2/5). That morning I noticed an ache in my lower right back. It reminded me of the same ache I had on January 1 when this whole saga begins. At this point I was peeing very light pink to clear and felt that my healing is progressing well.
Midway through the day my frequency and urgency increased and around noon I filled the bowl with bright red urine. That continued for about an hour and a half so I called my urologist and spoke with the physicians assistant. I was told that the urgency, the frequency, and the color we’re all consistent with the recovery, and that I could pick up an over-the-counter medicine (AZO) that would help with the urgency and frequency.
Reassured, I worked another couple hours, rushing back-and-forth to the bathroom when on my last visit before deciding to go home I noticed that my output had reduced to a trickle. On the way home (a 20 minute drive) about halfway there, I had a sudden urge and decided to just wet myself and clean up when I got home. And so it felt like I Peed and Peed and Peed. When I got home I rushed into the bathroom only to find that my underwear was dry save a few drops of blood. The next two hours were agony as I tried unsuccessfully to void. At My wife’s suggestion I got in a warm bath but that didn’t help either. Afterr waiting an hour for the emergency standby doctor to give me a call, I was instructed to go to the ER where I remain still.
What I’ve learned is that my bladder had likely shed a scab or produced enough blood to clot my urethra. At the ER I received a catheter where they drained over 1000 mL of urine. I cannot tell you the relief I had once my bladder begin to empty. My urologist instructed the hospital to admit me and keep on a constant bladder irrigation to help heal the surgery wounds and to ensure that I did not clot again. I went in on a Tuesday evening about 10:00 o’clock, and it’s now Thursday at 11 o’clock where I’m recovering nicely. Tomorrow the foley will be removed and once my bladder wakes up and demonstrates that I can void I’ll be able to go home.
While here, I met another physician in the urology group that told me that my pathology results were in.
High-grade papillary urothelial carcinoma, superficially invasive.
Muscular areas propria not present.
Tumor staging: pT1.
The pathology department remarked that there was not sufficient muscle to test. The urologist explained that there’s a fine line between risking a perforation and collecting enough tissue and that it was a judgment call. They would often error on going back for a subsequent trip rather than risking opening up the bladder in the event that it’s full of cancer cells.
I will be assigned to a new urologist in the group, one that specializes in the oncology side of things that will be my partner for the next several years depending upon the length of the treatment plan.
I am already greatly encouraged at a level of communication that I receive every day from their visits. I know that I’ll go back in six weeks to do another biopsy. The plan this time is to send me home with the Foley to avoid ending back up in the ER due to a clot.
At this stage of my journey-the anxiety, and drama are over. I’ve done sufficient research to feel reasonably confident that I still have a long life ahead of me even if it’s perhaps going to be less convenient than before.
A lot will depend on the biopsy in six weeks-but I’m not going to own an outcome that is six weeks away. I’m going to deal with what I have now. My next appointment will be with the urologist that specializes in the treatment of bladder cancer, I’m confident that we will work out a plan that will give me a high quality of life. I will trust his poison and scalpel and my focus on diet to reduce either the reoccurrence, or the severity of a reoccurrence. I’ve learned that bladder cancer, like skin cancer, has a better than 50% chance of reoccurrence. but I’ve also learned, that with diligence and catching it early that is highly treatable with side effects that are reasonably manageable.
I will come back and clean this post up with an edit later. At the moment I’m still at the hospital, doing this on my iPhone, unable to sleep.
Tomorrow I go home-it’s going to be a great day.