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36 yo female, found 1.5 x 3cm mass on bladder incidentally on CT scan

1 year 4 months ago #56354 by Newmama
Ok thanks! That’s helpful!

It’s been a weird week. Knowing that something major could happen and I’m just waiting for it. The little bit of research I did online (ok, maybe a bit more) seemed to say there was a much higher chance of it being cancer if the mass was more than or equal to 3 cm. I keep on focusing on that. There’s a lot to keep me busy this time of year but this is always in the back of my mind.

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1 year 4 months ago #56351 by Cynthia
If you are in Kansas the University of Kansas Medical Center looks like a good bet if you are in MO Barnes in St Lewis. Talk to your GYN when you see them it is possible they have someone who is good they may suggest. At this point you don’t need a cancer specialist as much as you need a good Urologist to find out what you are dealing with.

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society
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1 year 4 months ago #56345 by Newmama
Thank you so much for the quick and kind response. I really hope I don’t become part of this group but if I do, it seems like a great supportive group.

I’m in Kansas City. My husband has been to a urologist but I don’t know anyone else. Any recommendations would be really helpful!

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1 year 4 months ago #56344 by Cynthia
Welcome to our community and let’s hope it is a short stay. What you are looking at could be something or nothing and having said if it is something there are many things it could be that are not cancer. Ask for a referral or seek out a urologist, if you need it give us your state we may be able to offer suggestions of where to go. No waiting until the 12th really isn’t that long to wait for an appointment and if it is with a GYN they will refer you to a urologist at that time if they feel your test results warrant it. I will tell you a story about worrying about test results until all the facts are in. I was going through tests to start treatment after my bladder cancer dx when I got call. There was something suspicious on my liver! More tests followed, as I was setting in the waiting room for results we could hear the receptionist making calls and she was calling to set up a liver biopsy! Breathing into a paper bag followed as we waited. Come to find out I have what amounts to a birth mark on my liver and the call was for another poor soul. The moral of the story is do due diligence but know that because something is suggestive it does not mean it is something. Get it checked out and let us know what you find, we are here if you need us.

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society
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1 year 4 months ago #56343 by EdFlaherty
I would get a urology appointment ASAP, request a cystoscopy to see what is going on in the bladder.

A Cystoscopy is an almost painless procedure that can be done in the doctor's office. It allows your doctor to examine the lining of your bladder and the tube that carries urine out of your body (urethra). A hollow tube (cystoscope) equipped with a lens is inserted into your urethra and slowly advanced into your bladder.

A cystoscopy is by far the better choice and should be done ASAP to see what's going on. The procedure can basically rule out bladder cancer or give you a defined diagnosis and treatment method. Bladder cancer is highly treatable, the sooner you get treatment the better - early diagnosis is the key. Good luck!
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1 year 4 months ago #56342 by Newmama
Hi everyone. I went to the GI doc for stomach pain and had an upper GI scope and colonoscopy done. Everything was fine. Sent to have a CT scan of abdomen and pelvis. Most of the results were fine. Except they found something. This is from the report...

“There is a 3.5 x 4.8 cm right ovarian cyst without calcification. The left ovary is not enlarged but appears stretched along
the left posterolateral margin of the urinary bladder. Left posterolateral urinary bladder wall thickening is suggested, however. In addition, there is also a suggestion of a left lower anterior wall
urinary bladder noncalcified mass measuring 1.5 x 3.0 cm. The urinary bladder is mildly distended. Numerous small lower pelvic calcified phleboliths are noted.”

The bladder mass is the thing I’m most concerned about. I’m 36. I have two young kiddos. I’m just really nervous. No symptoms, I think. I tend to be easily influenced so when I google symptoms, all of a sudden I’m sure I have them! Haha.

They recommended that I have an ultrasound to get more images of the stuff going on. My ultrasound appointment is December 12 with a GYN. Should I be looking into getting a urologist? Does December 12 seem too far away? I’ve heard the waiting is the worst and from my very brief experience, it has been.

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