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In the process.....

6 months 4 days ago - 6 months 4 days ago #56633 by JIMG4
Hi guys.

sorry for the drop off. thought ild update and just vent a little.....

I've been feeling crappy even after my TURBT back in october. And a little over two months ago I found a lump on the right side of my neck which continues to get bigger. I had multiple doctors appointments and finally had a physical exam by my ENT. He ordered an ultrasound of my neck which in turn showed the 1 lump I found to actually be two tumors right next to each other and then also found multiple additional tumors throughout my neck and down into the top of my chest.

Today I had multiple biopsies performed on my neck and at the base of my neck at the same time and am now waiting for pathology results. I'll have those results next week Friday at 2 pm. Anxious as hell not knowing what all this is.

So with all this i've been just trying to keep myself above water with continued fatigue, weakness, shortness of breath, difficulty in swallowing and discomfort all over body malaise. And hence, have just not made it to these forums.

I hope everyone is doing ok and that everyone had a very Merry Christmas and happy New Year!

10/25/18: TURBT
11/06/18: DX Ta - low grade non-invasive TCC

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8 months 2 weeks ago #56125 by JIMG4
DL a.k.a. doglover, that's your new handle for me! LOL

I am relieved!! And yes the best diagnosis you can get for bladder cancer!!

Too funny, I was thinking the exact same thing about how our paths are identical!!! Without a doubt scope buddies all the way, we are on the same schedule.... slightly ironic wouldn't you say! I pray that neither of us gets anymore cancer news and that we both remain free from this ugly disease.

I will meet with me urologist on Tuesday next week 11/13, but as it stands purely scopes with no other treatments at this time.

Sorry to hear about your knee. I hope you recover quickly and are back to hitting the pavement soon. I returned to the treadmill today....albeit a slow walk but it felt good.

God bless DL! Praying for no recurrences for both of us!

10/25/18: TURBT
11/06/18: DX Ta - low grade non-invasive TCC

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8 months 2 weeks ago #56124 by doglover
Jim,
I am sorry that the results were cancer. However, I would consider that diagnosis very good news. No one wants bladder cancer, but from what I have read, that was the best diagnosis if you do have it. I am sure your wife was relieved to receive the news sooner.

We can be 'scope' buddies. I will be doing mine every three months as well. My Urologist did not suggest any injections. How about yours? She said there were too many side effects to do that.

I hope you have been able to get back to the treadmill without any more unpleasant reactions. I injured the knee (again) and must wait until Friday. I am praying I will be better by then and can get back to running. I have been walking the dogs however, and that is a real blessing.

Praying daily for no recurrence.

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8 months 2 weeks ago #56122 by JIMG4
Got the call today.

Non-invasive low grade transitional cell carcinoma. TURBT successful with complete resection. Start quarterly cystoscopies.

Relieved that there was no invasion into the bladder wall!!!

Not that anyone wants cancer but from a cancer perspective this is very good news!!!

10/25/18: TURBT
11/06/18: DX Ta - low grade non-invasive TCC

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8 months 2 weeks ago #56105 by JIMG4
doglover,

I am so glad to hear that you are emotionally relieved AND getting back to exercising!! That is excellent news!! You seem very calm with the final diagnosis of cancer, which I guess is a good thing. I will continue to hold you in my daily prayers that you have no recurrence and you remain healthy and strong!

I'm with you in regards to your urologist's comment, benign would be waaaayy better. But I understand why he's saying what he's saying. In the scheme of "cancer"....... low grade, non-invasive, that's much better than high grade T4.

Whatever God's will, there is no doubt in my mind that you will carry the load! With His grace continue to be strong!!! As always, my prayers and thoughts are with you!

I hope the running gets back up to full gear for you as soon as possible. I tried getting on the treadmill thursday (1 full week after my TURBT) with the intention of walking a couple of miles. I managed two relatively well, albeit a 20 minute mile pace. The walk must have shaken up my bladder because several hours later wonderful material came out in my urine!!! LOL!!! Other than that a little tenderness that next day but have given it a rest and am feeling good.

Thank you for the continued prayers! I will update when results are received on Nov 13th.

All my best.

Jim

10/25/18: TURBT
11/06/18: DX Ta - low grade non-invasive TCC

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8 months 3 weeks ago #56092 by doglover
Hi Jim!
Glad to hear you are feeling so much better following surgery. It's amazing how much improved you are after surgery. You sound like you had a spa day. I never had any pain or symptoms at all (except the hematuria) , so the tumor came as a total surprise to me. I am just now getting back to my exercise and I hope to run again by next week. They wanted me to restrict activity for awhile.
Emotionally, I was GREATLY relieved to know that the alien was totally gone! The stress is slowly leaving and things are becoming normal again.

I must say, I am with your wife on this. I would certainly want to know sooner. That is why I visited the urgent care and they gave me a printout of the results. They were in by four days.

Today my urologist said I had the best possible scenario: low grade non invasive. I was thinking that benign would have been a lot better, but I am very thankful for the results, because they could have been worse. I have come to terms with this. I have been reading the book of Job again. Sometimes God allows things to happen to us so that we can learn to trust in Him. So I am trusting that this will not return and I will remain cancer free.

Still praying for your results.

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