Recently Diagnosed High Grade T1

Similar to my case being treated at Georgetown University Hospital (Urology and Lombardi Cancer Center). My BC was diagnosed High Risk Non-invasive CIS in January 2018. I have gone through a first TURBT, then an MRI, then BCG induction. then another TURBT to remove tumor remnants, then BCG maintenance, then another TURBT to remove a small lesion. The latest diagnosis is pT1, that is invasion of lamina propia but not the muscle. I am waiting to know what doctors will recommend next. According to the Consensus Protocol I should continue with BCG maintenance (assuming that one can get BCG given the unexpected shortage). I thought I would share this story as others navigate the uncertainty.

Sara, any idea why my dad didn't have BCG? I didn't ask doctor about it as I know so little. Was it because he had T1G2 (medium grade)?

Thank you Tim, you mentioned that you had them every 3 months. Do you mind sharing how long you've been doing this? And, have you had to have bcg maintenance .

Just be sure to follow up have a cystocopy done as your Dr. will request I have had them every 3 months along with biopsy if Dr. seen something suspicious.