I don't know how slow or fast they grow but looking back I would say that my tumor was probably growing in the summer of 2012. I know this because of the signs I was having but didn't realize they were signs until after I was diagnosed in August of 2016. I had a very large tumor, so I am sure it was growing in 2012.
08/16/16 - TURBT - 1 tumor, T1HG, 7.5 cm x 7.5 cm x 1.8 cm, non-invasive papillary.
BCG treatments (15 rounds total - last March, 2018). As of latest cysto, Jun 19, 2019 - cancer free!
Hi Alan, thank you! I will try to get them to bump the TUR up. Though the Uro seems super busy. I am in kind of pants mode. When I had the cystoscopy a few days ago the Urologist seemed to say that tumor looked pretty small. Thanks for your support!
Welcome. I see Sara Anne has responded on another thread about some of your questions/issues. A month to do a TURB might be normal time frame if your URO is extremely busy or going on vacation for part of that time. While tumors don't grow that fast I'd want a little faster response personally if possible. Also, often other tests done such as a CT scan are done to rule out other involvement in the urinary tract. The nocturia could be many things including an UTI. I believe I'd be after my URO to see me (or GP, the ER isn't really built for that) on that possibility and try also to move the TURB up. At which time pathology will tell you more.
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.