Bladder Tumor Found few days ago- speed of growth?

5 years 11 months ago - 5 years 11 months ago #55016 by Alan
sswellborn,

Welcome. None of us are doctors so any ideas of how fast a certain tumor can grow would simply be an uneducated guess. You are right in aggressively attacking this especially graded as high and into the muscle.

I have a big question at the risk of creating a quandry for you. Hopefully others will chime in. Why is your URO doing radiation? Type of tumor? Is this his/her normal protocol? Have they talked about cystectomy and are there other issues?

The reason I ask questions is IF a cystectomy is the end game, radiation can make this more complicated. Radiation is not a regular regimen as it can damage tissues used in that operation. Are you being treated at a center that sees a lot of bladder cancer? This is a treatable and beatable disease, like your breast cancer but, it needs to be attacked properly.

Keep posting as others should see this and add insight.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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5 years 11 months ago #55015 by sswellborn
I don't want to scare anyone, but don't wait if at all possible. While some tumors grow slowly, some grow excedingly quickly. I am now in my second cancer recovery and had I waited either time, the results would have been far worse. My breast cancer was the size of a BB and everyone I counseled said "wait." Luckily, I didn't. The cancer had already spread to two lymph nodes and was the most aggressive type there is. I would have been dead within a year had I waited, and that was 18 years ago.

This time, I noticed blood in my urine the first of February, 2018. Tested, CT scanned and 3 cm tumor found. Surgery March 1 and the tumor was 9cm long and had invaded the muscle wall for a High Grade, T2 staging. My daily radiation and once weekly chemo starts Monday and, after 33 rounds of radiation, the "real" chemo to attack the cells in my blood starts. I do not yet know the timing for that treatment.

Ssw

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6 years 1 month ago #54785 by jones
Thank you! I was thinking I should go to the emergency at another hospital and see if it could be done right away. I guess I'm overreacting and should go with the scheduled procedure in 30 days. I was imagining that it could grow into the muscle more within 30 days. So I assume the growth is extremely slow and 30 days want to make a difference.

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6 years 1 month ago #54784 by sara.anne
Thirty days is not an unusual time for scheduling a TURB. Whatever is there has been there for a long time, even if it was not apparent. You will be fine.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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6 years 1 month ago #54782 by jones
I had a cystoscopy 3 days ago and a small tumor was found. My Urologist scheduled to remove it in 30 days. Could it grow into the muscle by then. He said it was very small and seemed superficial.
Am I waiting too to have the surgery to remove it or should I go to an emergency and have it done as fast as possible?

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