Blood in urine, former smoker

6 years 3 months ago #54497 by sara.anne
Replied by sara.anne on topic Blood in urine, former smoker
You could make an appt and cancel if it is a UTI
or
one more day would't hurt to wait

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator
The following user(s) said Thank You: Donnasue

Please Log in or Create an account to join the conversation.

6 years 3 months ago #54496 by Donnasue
Replied by Donnasue on topic Blood in urine, former smoker
I’m back again guys. I still have not heard from the doctor. I called twice yesterday and th y said the results are in however a nurse or the doctor has to read them and they would call. Doctor left at 4:30 and nurses were there til 7:30. I didn’t call yet today because my daughter was with me and I’m at work. My daughter is now with a friend and when I get out I will call again. Should I just make an appointment with a urologist??

Please Log in or Create an account to join the conversation.

6 years 3 months ago #54492 by Donnasue
Replied by Donnasue on topic Blood in urine, former smoker
Jack, thank you. Yes I am a tough one. After losing my mom to colon cancer when i was 28 I developed an unhealthy anxiety about my health. So I've gone down the worry road quite a few times. Nothing like this though. Thanks again. I'll keep you in my prayers as well as everyone else here.

Please Log in or Create an account to join the conversation.

6 years 3 months ago #54491 by Jack R
Replied by Jack R on topic Blood in urine, former smoker
DonnaSue,

You are a tough one. I know from where you come, so...

From first hand experience, kidney cancer (at least in the early stage) does not have cause pain.
After months of BCG for bladder cancer (going well, thank you), on a scan they found my kidney cancer - a whole different breed of cancer than the bladder.

Any things are still looking good. My team and I have a plan, treatment is happening, and a good outcome is expected. A new normal if you will.

Try to NOT get yourself tied up in negative thoughts and worry. You will deal with whatever life throws at you, once it has a name and you have a care plan.

Hug your daughter, get out and have a special day, play Chutes and Ladders..anything to remind yourself that life is good. Yes, we all know how hard it is to stop worrying about the "worst". But do try to stop.

Best,
Jack

6/2015 HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one & only kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo# 3
Begin year 4 with cis
2/19 Chemo #4
9/19 NED again :)
1/2020 CIS is back
Tried Keytruda, stopped by side effects
Workin on a new plan for 2021
The following user(s) said Thank You: Donnasue

Please Log in or Create an account to join the conversation.

6 years 3 months ago #54490 by Donnasue
Replied by Donnasue on topic Blood in urine, former smoker
I suppose that is one of the things scaring me is that everything I read points straight to bladder cancer because I have zero pain in the kidney area... Thank you for your post it helps to not feel so alone.
I called the doctor's office and said the culture results weren't back yet possibly due to the holiday. She said the dr. would call when they are back. So I'm waiting for the phone to ring and hoping my daughter will be involved with something else when that happens so that she's not hearing the call.

Please Log in or Create an account to join the conversation.

6 years 3 months ago #54489 by Alan
Replied by Alan on topic Blood in urine, former smoker
As Jack and Sara Anne have posted, you won't know anything until you get the culture back. IF it is not a UTI it still can be MANY other things. Kidney stones can cause bleeding. I even know 3 people that have passed blood with no known reason ever discovered, my wife is one of those. They did a retro-pylogram into the kidneys and NEVER found a cause. The best advice I ever got..... one day at a time.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
The following user(s) said Thank You: Donnasue

Please Log in or Create an account to join the conversation.

Moderators: Cynthiaeddieksara.anne