1. Forum
  3. All Categories
  5. Newly Diagnosed, New To The Forum
  7. radical cystecomy

radical cystecomy

6 years 11 months ago #53317 by Hannah01
Replied by Hannah01 on topic radical cystecomy
Hi Razor, sorry to hear of the trouble. I wish Mitomycin, works and you find good suggestions here..Good luck!!

Please Log in or Create an account to join the conversation.

6 years 11 months ago #53307 by Cynthia
Replied by Cynthia on topic radical cystecomy
Radar it is always best to think one step ahead of blc if you never need the info there is still compfort in having a battle plan. There are several world class guys that I have in my short list in the this country, it would depend on where you are or if you are willing to travel.
Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

Please Log in or Create an account to join the conversation.

6 years 11 months ago #53306 by Cynthia
Replied by Cynthia on topic radical cystecomy
Radar it is always best to think one step ahead of blc if you never need the info there is still compfort in having a battle plan. There are several world class guys that I have in my short list in the this country, it would depend on where you are or if you are willing to travel.
Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

Please Log in or Create an account to join the conversation.

6 years 11 months ago #53302 by Alan
Replied by Alan on topic radical cystecomy
Razor,

Sorry you have to face what is going on but, welcome. First, let's hope mitomycin works!

If it comes to a cystectomy you want a practice that does a LOT of these. 50+ a year. Too many see mostly prostatic cancers. A big teaching hospital or group that has a specialty in bladder cancer like MD Anderson as an example.

Also, I am linking a bookmark that many of us have used on the 3 main diversions to plan ahead. I am not sure our hyperlinks are working so copy and paste: my.clevelandclinic.org/health/articles/urinary-reconstruction-and-diversion

Good luck as post with any questions.
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

Please Log in or Create an account to join the conversation.

6 years 11 months ago #53301 by Razor
radical cystecomy was created by Razor
The three rounds of BCG treatments have not worked and so we will try a course of Mitomycin. If this also fails I am looking at a radical cystecomy. I would appreciate any comments as to what I should know and what I should expect. Where is the best place to go for this procedure and who are the best doctors. I am 73 and have an active sex life. I would want every attempt to avoid damage to critical nerves. Thank you.

Please Log in or Create an account to join the conversation.

Moderators: Cynthia, eddiek, sara.anne
  1. Forum
  3. All Categories
  5. Newly Diagnosed, New To The Forum
  7. radical cystecomy

Login