I have a question about my moms treatments she got while in the hospital in Oct. before she left she had a total of 30 radiation treatments and only one Chemo. because she got so sick. She has not received anymore and we did have her at home but that didn't work with her on Hospice there to much stress with family and her care. The Hospice team there at home told her she would never walk, again or go shopping again. We let them go and a few days later we had our mom in the wheel chair out at Wal mart and she did great. She got tired but she enjoyed her ride and her shopping. They kept upping her pain medication and she was on 12 hour ER of Oxycotin 40 mg every 12 hrs
She is now at a nursing home of her choice where she worked for many years and feels comfortable here. I have been here 2 days and she has only had 5 mg of Oxycodone every 4 hours and done just fine. She will get a new Hospice here and my concern is the pain medication. But also I am wondering how much the treatments she did get help her is my biggest question. She isn't in near as much pain. All of her swelling in her legs went down not long after she got home and the only reason she is walking is because she hasn't had any therapy to help her. We are trying to do some on our own and so is she. She wants to walk again.
Hospice says she is declining? But I see her weak but I am not sure that it is all Cancer related. She has had so much stress with hospice and us siblings fighting. Is it possible that the treatment she did get killed or shrunk some of her cancer ? She had it in one of her kidneys that wasn't working any longer they told us. They said her cancer started in the bladder tissue in that kidney and is why they call it Bladder kidney.
It is in her sacrum bone and pelvic area . There were 3 small masses on her rib cage as well.
We seem to keep getting pulled in different directions with this Cancer. Mom doesn't want anymore treatments. And one thing that they did do for her that helped a lot, in Oct , when she was in the hospital in Tulsa, was gave her a blood transfusion because her hemoglobin was so low . She was a whole new person the next day!
On Hospice the draw back is no more doctor visits or things like that to sustain her life. I know I seem to have more questions and I do. Mine is Hospice is this the norm for Hospice ? I am wondering what to expect from this new one this week and the other is do you think the treatments she did get made a difference for her cancer?