82-year-old mother with CIS and question BCG

7 years 7 months ago #51871 by Flamenco.
Replied by Flamenco. on topic 82-year-old mother with CIS and question BCG
I would try to speak with your mother·s medical team, as to how they assess her ability to cope with the BCG treatments. If she had surgery when CIS was suspected, they probably took a series of random biopsies from the bladder lining, which would be much more likely to cause a considerable amount of pain, than with a surgery to remove a single visible tumour. From my own experience, the BCG treatment after effects were fairly shortlived, and the pain was manageable and certainly nowhere near the level of pain following the surgery .If they are reccommending treatment, presumably they think Mum will be able to cope. It would probably help if she knows that the after effects are usually not too bad, as the fear of pain is usually worse than what it actually turns out to be.
Let us know how things go, and wish her well,
Diane
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7 years 7 months ago #51870 by Jack R
Thanks for being there for your mother.

You really need a solid conversation with her doctor, and to bring quality of current life into the conversation. If you do choose to try BCG treatment, it seems that you need her care team to be ready to act to prevent discomfort or distress.

In my experience, and from the experiences of others, the bodily effects of BCG are highly individual. Some report no discomfort while others, including me, have major pain that can last a couple of days. Everyone seems to react differently.

That said, the dosage of BCG can be reduced down to one-third or one-tenth, according to various reliable sources. Most if not nearly all sources state there is no reduction in benefit from a reduced dose, while sources differ on the question of reduction of side effects. Talk to the doctor.

Other treatments may be available, may have less expected side effects. Again talk to the doc.

CIS is considered to have the ability to spread quickly, but again, it depends on the individual. I have CIS and would love to find a simple answer to that question.

Hopefully her care team can address her comfort as a first priority and design a treatment plan that is acceptable.

Best
Jack

6/2015 HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one & only kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo# 3
Begin year 4 with cis
2/19 Chemo #4
9/19 NED again :)
1/2020 CIS is back
Tried Keytruda, stopped by side effects
Workin on a new plan for 2021
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7 years 7 months ago #51856 by Gibsongal57
My 82-yo mother has just been diagnosed with CIS, following cancer cells showing up in urine but no lesion viewed during cystoscope, scraping and wash. This followed 4 years cancer free after TURBT for aggressive transitional cell cancer. Dr is recommending 6 wks of BCG. I have researched both her cancer and treatments in great detail. I fear she is too frail to endure the treatment (she had very difficult time following the recent cystoscope surgery, pain was unbearable afterwards and she ended up hospitalized for many days). After helping my father recover from squamous cell cancer of the salivary gland surgery and radiation, she is just exhausted and not wanting to do anything further that will cause her suffering. Can you please offer some advice or opinions? If she chooses no treatment, can you offer information on how quickly the CIS spreads/life expectancy? Thank you so very much.

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