Hi Jay! Looks as if we are both up late tonight!
You are right about no "written" BCG protocol, or, to put it another way, there are multiple protocols around. Here is one of the most used, from Dr. Lamm, one of the BCG pioneers;
"Six weeks after completing the 6 weekly BCG instillations we would normally inspect the bladder (cystoscopy) to be sure it is working and the tumor is responding. Maintenance BCG is generally given using up to three instillations at 3, 6, 12, 18, 24 and 36 months, and in high risk disease, at years 4, 5, 6, 8, 10 and 12"
If you haven't read Dr. Lamm's BCG web page, you might find it interesting
www.bcgoncology.com/treatment/bcg.html
My urologist does the maintenance for up to 24 months. I was able to do this, although at a reduced dose (1/3) by the end. He told me that not all his patients make it for the 24 months, so I was pretty proud of myself...and have now been cancer-free for over 8 years.
Sara Anne