New to the forum,,hoping not to stay,,,questions,

7 years 9 months ago #51422 by Jfoutz
I love you handle johndeere! My son loves John Deere! After you get you cystoscopy, you better post again so I will know you are just fine!!!

Hematuria 4/2016
TURBT 5/2016
BCGx6 7/2016
Reoccurrence & TURBT 2/2017
BCGx6 4/2017
BCGx3 7/2017
TURBT 10/2017
Gemcitabine X6 12/2017
Cytology negative 4/2018
Cytology negative 8/2018

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7 years 9 months ago #51421 by johndeere
did you have a cytology ??? Did it show anything ??,,So will they do a ct if the cytology shows something ?

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7 years 9 months ago #51420 by Jfoutz
If they find anything, I think you should go straight to the the best hospital. I got impatient so I had it done locally, but he did not get enough tissue to stage it. But you usually have to have 2 TURBTs anyway if you have a tumor so I cancelled my second one locally to do at University of Southwestern, a Cancer research hospital. If I had to do it again, I would probably go straight to the best hospital available. so again, I am still waiting. Maybe get the second one in 2 weeks. Let's just hope there is nothing and you won't have to worry about any of this. I knew there was a mass from my ultrasound and ct scan, plus I was bleeding a lot and going crazy.. No matter what the outcome of your test you have time to make the right decisions. The Doctor said it has been growing a while, so quit worrying. Easier said than done I know. Good luck!!

Hematuria 4/2016
TURBT 5/2016
BCGx6 7/2016
Reoccurrence & TURBT 2/2017
BCGx6 4/2017
BCGx3 7/2017
TURBT 10/2017
Gemcitabine X6 12/2017
Cytology negative 4/2018
Cytology negative 8/2018

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7 years 9 months ago #51419 by johndeere
so,,,IF the cytology comes back positive,,,should I let the local Dr do the scope and ct,,,,or try toget into Solan Kettering to do it ??

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7 years 9 months ago #51418 by Jfoutz
Sloan Kettering

Hematuria 4/2016
TURBT 5/2016
BCGx6 7/2016
Reoccurrence & TURBT 2/2017
BCGx6 4/2017
BCGx3 7/2017
TURBT 10/2017
Gemcitabine X6 12/2017
Cytology negative 4/2018
Cytology negative 8/2018

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7 years 9 months ago #51417 by Jfoutz
Go camping!!!

Hematuria 4/2016
TURBT 5/2016
BCGx6 7/2016
Reoccurrence & TURBT 2/2017
BCGx6 4/2017
BCGx3 7/2017
TURBT 10/2017
Gemcitabine X6 12/2017
Cytology negative 4/2018
Cytology negative 8/2018

Please Log in or Create an account to join the conversation.

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