I have been lurking on the forum for a few weeks now since my diagnosis. Many of the posts and responses have comforted me so thank you for that.
We moved to Morgantown, WV in July '15 and I finally got around to seeing a family doctor to get a refill on my synthroid in Feb when I complained of random, unexplained incontinence and UTI symptoms. I was sent for an ultrasound where a bladder tumor was detected. I had a cystoscopy and surgery less than 2 weeks later and a 5.8 X 3.5 X 1.5 cm tumor was removed. Mytomycin was administered post op. Pathology revealed the tumor was non-invasive but high grade. I started the BCG this past week- the typical once weekly for 6 weeks and then maintenance for who knows how long.
My husband is a surgeon and has been very helpful in explaining things to me in layman's terms which has been a blessing. This whole thing is just a shock. I lost my mom to breast cancer when I was 16, she was 44, so I have always felt that something like this would happen to me at some point. We have 2 children- 12 and 16 and I feel like history is repeating itself and I am really scared.
I am being treated at WVU. I am trying to remain optimistic and positive since that is my nature but inside I am really scared and I feel very alone. We have no family or friends close by. I work FT from home so the relationships I have with colleagues are distant. I feel uncomfortable burdening people. I guess I say all of that just to emphasize how meaningful and helpful reading the posts and the interactions of the members of this group have been to me thus far. While I am not thrilled to be here
I am thrilled to meet people who have traveled this road. Thank you.
-Karen