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question on cysto and diagnosis

4 years 4 months ago #49915 by Plk
Hi,
I know just how you feel. Last March my urologist told me the same thing before my first TURB. She turned out to be right and sent me on to a urology oncologist. You will know much more after the pathologist report.

I wish you the best, but keep in mind that knowledge is power and once you know more, you will have options.

Thinking of you.

plk

PLK in NJ
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4 years 4 months ago #49911 by sammyy
thank you for the info!

that pretty much confirms what I thought, I think I just started confusing myself a bit with everything that he did (and did not say)

they already scheduled the removal of the tumor (i had to ask what the difference was between a tumor and cancer, and he said what I have is a cancerous tumor) which I think was confusing me a bit... he kept calling it both.

and they already have treatment planned.

I guess the more I thought about it, the more surprised I was that he could be so definitive, but I guess in reality its not all that definitive as there are still things to be answered with the biopsy when they take it out.


40 year old male.
T1 Low Grade
Turbt done on 12-4-15

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4 years 4 months ago #49910 by sara.anne
Yes, it makes sense. While the definitive diagnosis cannot be make under after the biopsy is reviewed by the pathologist, the urologist has had a lot of experience and is making his best "guestimate." And, he could still be wrong.
They are, occasionally!!

It is only after the biopsy report comes back that you, and the urologist, will know exactly what, if anything, you might be facing. The pathologist's report will tell you for sure whether or not it is cancer, the grade (high or low....which indicates how fast it is growing), and whether or not it is still localized in the bladder lining or has extended into the muscle.

At that point you and the urologist will discuss your options. It is important to remember that in most cases bladder cancer is very treatable.

If you have any questions, someone where will certainly try to answer them.
Please let us know what happens...

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator
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4 years 4 months ago - 4 years 4 months ago #49907 by sammyy
hello, and thanks in advance for any help!

my question is....

I had a day and half with heavy bleeding and clots in my urine (male, 40).

I had the ct scan and x-rays, which showed a lump in the bladder.

followed up with the cysto exam the other day. (as well as urine and blood test)

my dr. tells me after the exam that its a tumor, and its cancer.

can they really tell that's its cancer without the biopsy being done though?

i'll probably call back today to check with them, but he basically said that when they remove it (scheduled for that in 3 weeks) and test it will be confirmed them, but he says its cancer at the moment?

does that make sense?

edit: he said its a T1 stage based on what he saw.


40 year old male.
T1 Low Grade
Turbt done on 12-4-15

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