I assume that what you called "cystoscopy under general anesthesia" was a TURB... transurethral resection of the bladder. You are very fortunate that it was low grade. Howevver, I am puzzled if your urologist said that you didn't need any more cystoscopies. Are you sure he/she didn't mean any more biopsies?
The dirty little secret about bladder cancer, especially low grade, is that it tends to recur. The usual protocol in a case like yours might be a cystoscopy
(visual exam by the urologist in the office) every three months for two years, then every six months until five years have passed, and then annually forever.
I am not a urologist, but I can't imagine that your urologist has not scheduled you for follow ups.
I also live in Oregon...Portland. I am being seen by a private urologist, but OHSU is known for having an excellent urology department and has lots of experience in bladder cancer treatment. If you are feeling uneasy, that would be a very good place for a second, follow-up opinion.
Sara Anne
