Doctor stopped the BCG treatment after 6 treatment

Thank you Alan for sharing with me. I truly need all the mental support I can find right now to keep sane.
This is a very scary thing to go through for me. Sometimes I just want to go to sleep and wake up knowing this is all but a dream.

I'm hoping to meet others who are going through this and been through the same thing I'm going through, we understand more than others.

Thanks again and I'm happy that you are clear of the cancer now.

So the plan is now, my current dr canceled my cystoscopy on the 15th of this month and he referred me to OSU James Cancer Center on the 12th of next month.

I'm just a mess right now and feel scared, tired and don't feel like doing anything.

Wish me luck.

Thank you for your kind words. I think your right about going to OSU. That is where I first started going 4 years ago and had some other 6 week treatment of something that started with M. The last time I seen that Dr he said I was clear and to come back in 3 months so he can have a look.
Needless to say I didnt go back, I dont like them looking into my bladder it hurts.
2 years later I started bleeding again, I knew something was wrong, so I went to a Dr closer to our home and here I am.

OSU is over an hour away from our home, but is the best place for me to go.

A lot of these country Dr's I dont feel safe with in the first place. But you maybe right, he knows what he is doing and thinks its best that I go to OSU.

I hope and pray that they can help me. I do not want to go through a 5th surgery

Thank you again for your kind words. I pray that everyone here and out there will get the help they need. God works in his time and his way.

Again, thank you for the kind words...Im calming down some now....just the waiting game now I guess.

God bless you.

Thank you for responding back to me.
My Dr said I have a rare bladder cancer. I had 4 surgeries removing the tumors.
This last time the tumor bored through the lining of the bladder wall but not into the muscle...said it was going side ways. He said it was not a low grade T1 and not a high grade T1 that is whats strange to him.
But he wanted to treat it as a high grade to be safe.
I have read where people get these side effects "pain in the joints and muscles" and dr's would prescribe them pain meds, which he did and it helped 100%
Now just having 12 more to go once per month I would think it would be easier than every week.
I had said to the nurse yesterday that after the cystoscopy on the 15th of this month I wanted to talk to him about the why's and what's etc....I said I could do this and just take aspirin and no narcotics.
And if he still says stop the treatments I might want another option. Well I get a call today from OSU James cancer center saying I have a appointment with them next month.
I did not say I wanted that, I said I "might" want that after talking with my Dr.
I am so confused right now and scared. I wanted to go through all these treatments and beat this cancer. I have high blood pressure and anxiety, which today is going off the charts!
What is so dangerous about finishing these treatments off?
12 more once per month would be easier than once per week like was planned.
Im scared, confused and dont know where to go.
Im trying to get my Dr to call me and explain to me the why's and what's, but he is always on the go...even when I see him he runs in then back out of the room like Im a number.
I pray something good comes out of this...I dont want to loose my bladder or have the cancer spread. I pray to God everyday and night for his help...and this is whats going on