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Newly Diagnosed with Stage 4 Urothelial Cancer

9 years 4 months ago #47666 by sara.anne
Replied by sara.anne on topic Newly Diagnosed with Stage 4 Urothelial Cancer
If you click on the user name on the left side of a post, it should take you to the profile!

Glad to hear that you are already at a great place for treatment!!!

Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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9 years 4 months ago #47665 by marieharvey
Replied by marieharvey on topic Newly Diagnosed with Stage 4 Urothelial Cancer
Thanks Sara Anne, I went to the treatment centers link you provided and mine (Siteman Cancer Center in St. Louis) is on the list.

Fighterm, my tumor was in right ureter. When they removed it, that's when they found it in some lymph nodes. I'm hoping you are correct about my anxiety lessening after I hear what oncologist has to say. The waiting and not knowing anything is torture.

I'm still trying to navigate around here -is there a way to read someone's profile?

Thanks so much, Marie

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9 years 4 months ago #47662 by fighterm
Replied by fighterm on topic Newly Diagnosed with Stage 4 Urothelial Cancer
I am sorry that you have to join our club. As Sara Anne said, it's the most common type of bladder cancer. Is it in your both ureters and in your bladder?
I know you are scared now, but once you see your oncologist and see the treatment plan, it'll be easier. I have two cancers now concurrently and threat them as my doctors plan.

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9 years 4 months ago #47654 by sara.anne
Replied by sara.anne on topic Newly Diagnosed with Stage 4 Urothelial Cancer
The most common type of bladder cancer is "transistional cell" or urethelial cancer. This arises in the urethelial tissue is, very basically, the tissue that forms the lining of the bladder and adjacent structures such as the ureters. It is the type of cancer that most of us have.

I am very sorry to hear about your diagnosis. Please let us know what the oncologist recommends. This might be a good time to consider getting an opinion at a center that has major expertise in this type of cancer, if you aren't already being treated at one. There is a "treatment center finder"

bladdercancersupport.org/bladder-cancer-help/resources/treatment-center-finder

here on our web page with lots of places listed geographically. You want to be treated by doctors who have lots of experience with urothelial cancer.

We will be thinking good thoughts for you.

Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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9 years 4 months ago #47652 by marieharvey
Newly Diagnosed with Stage 4 Urothelial Cancer was created by marieharvey
Does anyone else out there have Urothelial Cancer? Due to tumor in ureter, I had ureter reimplantation surgery 3 weeks ago. 21 lymph nodes removed, Cancer in 2, stage 4 diagnosis. Initial appointment with oncologist not until next week. Hate the waiting. Still recovering from surgery and so scared and anxious..

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