Hello, thanks for responding. My diagnosis of papillary urothelial cancer is low grade (Former WHO 1 of 3).
I have sought out a second opinion and am in Boston, Ma. Also consulted with Dana Farber, so I feel fortunate in many ways.
My biggest concern, and the reason for the second opinion was that many of my biopsies did not contain any muscle tissue. I have spent many years working as a health care provider, so not getting muscle tissue for biopsy was unsettling to me. If it hadn't reoccurred so frequently maybe it wouldn't have worried me so.
In any case, the last biopsy also was good news in that there was no lamina propria invasion, but again, no muscular is propria present!
The reason for the stent is because the cells had spread to my left ureter. Placing the stent was surprising to me, and the discomfort has made this post-op course much worse than any others! ( 7th procedure).
My main concern is the lack of muscle tissue, and the frequency of recurrence, despite 2 rounds of BCG.
It's difficult too, to explain to the family...trying to be positive as it's considered low grade, but it's hard to be optimistic when you are in pain and frightened!
Luckily enough, my labs and CT scans are looking good! Not sure why I did not get the Mitomycin, and can only guess the surgeon held off because of the stent? Maybe too irritating?
Going back next week to either have it removed, replaced or taken out.
Thanks for allowing me to post and I appreciate any suggestions.
This was the worst post-op, and as thankful as I am that it's not invaded, it has been a long painful 8 weeks!
