First Cystoscope after surgery and BCG

9 years 9 months ago #46429 by AnneH
Replied by AnneH on topic First Cystoscope after surgery and BCG
Thank you Sara Anne. Either is convenient, both are costly and no guarantees we will get an answer. At least with a diagnosis you can fight whatever it is and move forward, without you are in limbo.

On a lighter note I got called Annie because I had an E at the end of Ann were you subjected to the same torture? lol

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9 years 9 months ago #46421 by sara.anne
Replied by sara.anne on topic First Cystoscope after surgery and BCG
Anne, I have not had any personal, clinical experience with either, but they have superb reputations. I think it would depend on which is more convenient for you.

I DID have a good friend who just finishing a fellowship in urological surgery at Cleveland Clinic....but that doesn't count!!!

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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9 years 9 months ago #46420 by AnneH
Replied by AnneH on topic First Cystoscope after surgery and BCG
Thank you all for your support and kind messages. My Doctor called and I'm happy to say my biopsy came back negative and he will see me for my 3 month cysto in August.

Although I'm extremely blessed my husband is suffering with a condition they have a clue what it might be. He has lost 40 pounds and has to keep a foley in so he doesn't retain urine and cause kidney problems. The urologist says it is a neurology problem. He has been in the hospital twice and emergency room five times. His nerve conduction test has made several Doctors state they have not seen test results like this ever.

They suggest we go to Mayo or Cleveland Clinic. Has anyone had any interaction with either of these?

Regards,
Anne

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9 years 9 months ago #46412 by carol58
Replied by carol58 on topic First Cystoscope after surgery and BCG
I will be praying for good results!

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9 years 9 months ago #46410 by Joey
Replied by Joey on topic First Cystoscope after surgery and BCG
Anne, great news. I can never get over the nervousness as my appointment time draws near.

Joey

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9 years 9 months ago #46407 by Flamenco.
Replied by Flamenco. on topic First Cystoscope after surgery and BCG
Just doing a quick Happy Dance in my office for you, while I have no clients!
Diane

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