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Concern about being outside the odds

11 years 2 months ago #44079 by mmc
Replied by mmc on topic Concern about being outside the odds
Is it in your bladder? I'm not reading anything that points to your bladder.

Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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11 years 2 months ago #44076 by jingles916
Replied by jingles916 on topic Concern about being outside the odds
I just wanted to let you all know that I've had the 3rd of the transvag ultrasounds and the would be cyst has grown considerably. It's now 6cm and my gyno is sending me to an oncologist who specializes in cases like mine with previous failed surgeries to recommend a hysterectomy. I will be happy to be rid of it, (haven't had need of it for nearly 14 yrs), but I am not looking forward to the down time, I'm told could be upwards of 4 weeks. I will have them test the mass for colon cancer on the off chance of it being in that area and disguising itself and the prevalence of colon cancer running in my family badly. Thanks for your kind responses.

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11 years 4 months ago #43811 by jimswife
Replied by jimswife on topic Concern about being outside the odds
Is it possible that you have adhesions that are causing the pain? I know I have them and sometimes it's quite painful wait, it's VERY painful. From the previous surgeries it sounds as if that could be a possible cause of your pain. This is just a possibility. If you aren't content with the first gyno's opinions and suggestions move on to someone that you can work with. I agree 2 months of pain isn't an option always. Wishing you the best with your journey.

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11 years 4 months ago #43787 by jingles916
Replied by jingles916 on topic Concern about being outside the odds
sara.anne and CatherineH, thank you for the kind welcome and replies. I am going to see my primary on Friday and will mention to him the mass found in my pelvic area. Maybe he can recommend some other tests or the referral to the urologist. I've had a urologist before, but he was elderly then and I am not sure if he is still practicing. (I've not adhered to the anti kidney stone regimen like I should, nor kept in touch with him. :)) It was my primary goal the last two years to not even see a dr, let alone have surgery after what happened in 2010. Again, thank you for the kind welcome and I will let you all know what turns up.

jingles

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11 years 4 months ago #43779 by CatherineH
Replied by CatherineH on topic Concern about being outside the odds
Hello and welcome... I'm sorry you have had such a tough go of things and are still experiencing pain.

I would venture a guess that most people experience blood in the urine prior to their diagnosis of bc, but as with everything, there are no absolute rules so I would say it is possible to have it without blood in your urine. I really didn't have any to speak of except a little bit on the toilet tissue a few times, but nothing that could be seen in my urine. But that certainly doesn't mean that you have it.

The only way to really know is to make an appointment with a urologist. He/she can do a lab workup which can detect any atypical cells. The definitive answer would be to have a cystocopy which allows them to see inside your bladder with a camera. If you are still experiencing abominable pain, either a pelvic MRI or CT scan would show if there is anything external to the bladder that is problematic. I know they said 2 months and "maybe" an MRI, but that seems to be a long time to be in pain with no answers.

I hope you find relief from your pain soon. Again, welcome.
Best wishes... Catherine

TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN

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11 years 4 months ago #43777 by CatherineH
Replied by CatherineH on topic Concern about being outside the odds
Hello and welcome... I'm sorry you have had such a tough go of things and are still experiencing pain.

I would venture a guess that most people experience blood in the urine prior to their diagnosis of bc, but as with everything, there are no absolute rules so I would say it is possible to have it without blood in your urine. I really didn't have any to speak of except a little bit on the toilet tissue a few times, but nothing that could be seen in my urine. But that certainly doesn't mean that you have it.

The only way to really know is to make an appointment with a urologist. He/she can do a lab workup which can detect any atypical cells. The definitive answer would be to have a cystocopy which allows them to see inside your bladder with a camera. If you are still experiencing abominable pain, either a pelvic MRI or CT scan would show if there is anything external to the bladder that is problematic. I know they said 2 months and "maybe" an MRI, but that seems to be a long time to be in pain with no answers.

I hope you find relief from your pain soon. Again, welcome.
Best wishes... Catherine

TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN

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